Invest in ME Research - NEWS ITEMS

News Items

Apr 2019: Team-IiMER Royal Parks Half Marathon

Invest in ME Research participants in the Royal Parks Half Marathon in London in October.

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Apr 2019: IiMER Present at Stryn, Norway

Invest in ME Research recently provided a presentation for the Stryn, Norway conference on ME.

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Mar 2019: IiMER Sponsoring NIH Thinking the Future Lunch

Invest in ME Research created the Thinking the Future network to encourage young and early career researchers into ME.
We are taking it further as we work with USA National Institues of Health.

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Danish parliament separates ME G93.3 from Functional Disorders

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Sad news of a friend of IiMER and a friend of people with ME

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A 32 page document giving details of issues with ME for the forthcoming UK parliamentary debate

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Invest in ME Research has arranged an inaugural meeting of leading European clinicians who are involved in treating people with Myalgic Encephalomyelitis. EMECC will play a role in Colloquium and Conference.

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A very useful paper just published by Timbol and Baraniuk discusses Emergency Department visits by ME/CFS patients.

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Remembering the influence of Anne Örtegren

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IiMER Christmas / New Year Fund Appeal - Help us raise awareness and funds for research into ME

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Oct 2018: Science journal to withdraw CFS review

Science journal to withdraw chronic fatigue review amid patient activist complaints

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Oct 2018: ME Conference Week in London 2019

ME Conference Week in London in 2019 is from 28th May - 1 st June.
Including a full program of events for young/ECR researchers, experienced ME researchers, new researchers to the field, clinicians, healthcare staff, patient groups and charities and patients and carers - allowing unique networking opportunities

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2018 September - Chairman's Welcome to IIMEC14 Statement

Invest in ME Research Chairman Kathleen McCall opens conference registration for IIMEC14 by welcoming delegates to the fourteenth Invest in ME Research International ME Conference for 2019.

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2018 August IiMER Funding of PhD Studentship

IiMER Funding of research at UCL continues with the decision to fund the existing PhD Studentship

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2018 The conference report from the IIMEC13 conference is available, online or in pdf format

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IiMER have made a submission to the Scottish parliament to provide information on services and research required for ME.

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A summary of the status of ME in 2018 - prepared for the parliamentary debate on ME in this month

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Invest in ME Research are pleased to provide the DVD of the IIMEC13 International ME Conference - containing full presentations in the conference.
The DVD from the 2018 IIMEC13 conference allows those who were unable to attend to see the full presentations at the conference and learn from the experienced and renowned researchers who presented at the conference. The DVD includes the powerful pre-conference dinner speech from Carol Head

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The twelfth year of publishing the Journal of IiMER at the IIMEC13 conference

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An article on ME Awareness Month 2018

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New paper from IiMER funded researchers at Centre of Excellence for ME

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2018 January Young/early career researcher conference in London . IiMER's attempts to build up the network of ME researchers for the future

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Invest in ME Research are very pleased to announce a dedicated presentation slot to remember the work of Anne Örtegren

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IiMER reply to NICE and Professor Mark Baker and summarise information on the guidelines.

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IiMER have secured more places for the Royal Parks Half Marathon 2018

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A Letter to Professor Mark Baker - Centre for Guidelines Director, NICE

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Removing Isolation from Young People with ME Update

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David Tuller's presentation was at the IIMEC12 pre-conference dinner on 2nd June 2017 in London.

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Solve ME/CFS Award for Research at #CofEforME

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NIH announcement validates Invest in ME Research's Centre of Excellence for ME Concept

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The SMILE Trial and Its Not-So-Happy Aftermath

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IiMER submitted its 8000+ word response to the NICE Guidelines for CFS/ME Consultation Review

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A new primer for ME/CFS Diagnosis and Management in Young People

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Now in its eighth year we wish to introduce another level to the Biomedical Research into ME Colloquium in 2018.

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“Defining autoimmune aspects of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)”
An opportunity to interact with IiMER-funded PhD students.

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Solve ME/CFS has announced the award of a grant for research at the Centre of Excellence for ME.


The award allows continuation and expansion of the work started by Invest in ME Research funded researchers and complements ongoing research at the Centre.

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Good news of new donation for the Centre of Excellence for ME which is helping to enhance the foundation of biomedical research into ME that has been established.

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For the UK Centre of Excellence for ME we have now raised £200,000 in total for past, current and planned projects based at the UK Centre of Excellence hub in Norwich Research Park.

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IiMER funded PhD students Katharine and Fiona recently visited Berlin to present about ME.

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We are very pleased and honoured to announce that Anne Cooke, Emeritus Professor of Immunobiology at University of Cambridge, has agreed to join the advisory board of Invest in ME Research.

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Highlighting the Scandal of Past Treatment of ME - Cause and Effect. We release Kjersti Krisner's keynote speech from 2016.

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On #InternationalMEAwarenessDay and for the UK Centre of Excellence for ME we have now raised £188,000 in total for past, current and planned projects relating to gut microbiota, and other research being developed at the UK Centre of Excellence for ME.

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For ELEVEN years Invest in ME Research has been organising international biomedical research conferences in Westminster, London. Our choice of venue for #IIMEC12 reflects our commitment to patients, families, carers, researchers and healthcare staff.

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A new book covering the truths and untruths about ME - and the political machinations that have been, and are preventing proper science from being performed to resolve this disease.

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Among the amazing efforts being made by supporters to raise funds for the UK Centre of Excellence for ME and for the biomedical research being carried out and planned - is this from Mike Harley.
Mike is running 28 European marathons in five years - supporting our five year plan to develop the Centre of Excellence and carry out the UK rituximab trial.
Mike's efforts are described in the link below -"Running 28 European Marathons - in the name of Friendship"

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For Invest in ME Research Fane Mensah writes an article on collaboration and student participation in research into ME.

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Thanks to adonation from Freemasons in Norwich and a Ladies Sunday Lunch raffle we have now raised £181,000 in total for past, current and planned projects at the Centre of Excellence for ME.

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Media interviews carried out by the BBC Look East team demonstrated that other media coverage of ME does not have to consist of misleading and incorrect information.

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The new book on ME by Dr Ian Gibson and Elaine Sherrifs is going through its final proof-readings.

Norwich based Ian Gibson is former MP for Norwich North, former dean of biology at the University of East Anglia and was chair of the science and technology select committee from 2001-2005.

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Dr Øystein Fluge from the Haukeland University Hospital in Bergen, Norway will be giving a public presentation on his team's research. The meeting will be in Norwich on 26th January 2017.

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Today we reach a landmark day in our B-cell/rituximab research project where the total in donations and pledges has reached £1/2 million.

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The Haukeland University Hospital team of Dr Oystein Fluge and Professor Olav Mella Team will visit the Norwich Centre as the collaboration between centres continues.

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Fane Mensah is at IACFSME in Florida and is sending updates via Twitter and via email to Invest in ME Research.

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We are pleased to announce that the charity has been successful with its Big Lottery Awards for All grant to help promote the Centre of Excellence for ME.

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Daniel L. Peterson Medicine Doktor, Simmaron Research, Sierra Internal Medicine, Incline Village, NV USA.

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A Role for the Intestinal Microbiota and Virome in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)?

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Ahead of our upcoming 11th International ME Conference we have a short update here about progress with the project.

We recently met with IFR/UEA researchers to discuss progress of the gut microbiota project.

PhD student Daniel Vipond and Dr Navena Navaneetharaja have been busy collecting samples from severely ill house bound patients - sometimes getting up at 2am! to set out on their journeys on some days. They have sampled 11 severely ill patients so far which is an admirable result as these patients are not easy to access and they have only been collecting these samples for a relatively short time.

Two new PhD students will start in September/October in Norwich Research Park.

One is funded by IiME and another one is a self-funding student who wishes to be part of the research and who is experienced in laboratory work. This student was specifically interested in participating in the ME research which has been started at UEA/IFR.

This underlines our strategy of creating the Centre of Excellence for ME.

A third student position funded by IiME is being advertised later in the summer. Invest in ME are also aiming to keep the MedRes studentships going as these have turned out to be very successful in many ways. These highly motivated medical students are not only very helpful for the research projects but they also become better ME educated doctors as well as influencing their student peers.

Some even stay involved in ME research!

The continuing work and atmosphere at NRP is very encouraging.

Professor Tom Wileman will discuss the project at our forthcoming IIMEC11 International ME Conference on 3rd June in London.

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More on the new venue for this year's conference which is kicking off a new decade of Invest in ME conferences.

While we are trying to move mountains for research into ME we are not moving far in terms of the venue- still right in the heart of Westminster.

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NIVEL study: CBT - This Recommended Treatment of ME/CFS is Often Detrimental to ME Patients

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The PhD and intercalating medical students involved in the IiME funded UK gut microbiota research participated in a panel session at the recent 10th International ME Conference in London on 29th May.

Bharat Harbham, Daniel Vipond and Navena Navaenanarathrama answered questions from the audience about their research and their impressions of ME.

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Prof. Simon Carding, Leader of the Gut Health and Food Safety Research Programme, Institute of Food Research and Norwich Medical School at the University of East Anglia, was interviewed by BBC journalist Susie Fowler-Watt and describes the project which Invest in ME is funding.

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  • The Irish ME Trust have contributed to the Invest in ME Biomedical Research Fund toward the planned gut microbiota projects at UEA/IFR

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    Crowdsourcing raises vital funds for ME research into 'leaky gut syndrome'

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    The initial target was to raise £100,000 for the foundation project and begin a research strategy which we could build on and initiate other biomedical research projects which will benefit patients and augment an international database of valid data.
    Let's do it for ME! is a patient-driven campaign to raise awareness and vital funds for a UK centre of excellence for translational biomedical ME research, clinical assessment, diagnosis and treatment for patients, training and information for healthcare staff, based around the Norwich Research Park in the UK and aiming to work collaboratively with international biomedical researchers.

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    IiME have distributed GP Information packs to Scotland

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    From Invest in ME articles
    A summary of the lecture by Professor Hooper organised by Invest in ME in 2005

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    IiME have published a response to the NICE Draft Guidelines for CFS/ME. Our response - PDF here /Nice pro-forma here.
    Your own comments page here
    Margaret Williams' comments here

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  • Last Update December 2018

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