ME - What it IS…

  • Myalgic Encephalomyelitis (ME) is a severe systemic, acquired illness
  • Estimated to be 2* as common as MS and 3* times more prevalent than HIV/AIDS,
  • Clear clinical symptoms which manifest predominantly based on neurological, immunological and endocrinological dysfunction
  • Multi-factorial pathogenesis with the hypothesis of initiation by a viral infection prominent.
  • Most frequently follows an acute prodromal infection, varying from upper respiratory infections, bronchitis or sinusitis, or gastroenteritis, or an acute “flu-like” illness.
  • Before acquiring ME most patients were healthy, leading full and active lifestyles.
  • Reaction to physical and mental activity and sensory input is unique to ME.
  • Over-exertion can make ME worse and the effects are often delayed and may not be seen within 24 hours.
  • Symptoms can range from mild to very severe and can include:
  • Cardiac and Cardiovascular Problems
    • Cognitive Dysfunction
    • Gastro-intestinal Problems
    • Headaches
    • Hormonal Imbalance
    • Immunological Problems
    • Muscle Weakness and Intense Pain
    • Neurological Problems
    • Sleep Problems
read more

What Needs To Be Done?

The last decades have seen no major investment into correct research into myalgic encephalomyelitis.
Instead an approach to research has been taken which, despite objections from the patient community, has largely funded flawed psychiatric research about the disease.

Adequate funding must be directed to biomedical research and new knowledge from other disciplines such as virology, immunology , endocrinology etc has to be brought in to help research into ME.


What Are We Doing?

Invest in ME Research has produced a strategy of answers to the major problems and we are attempting as best we can to effect the necessary change.


Invest in ME Research (IiMER) was set up with the objectives of making a change in how ME is perceived and treated in the media, by health departments and by healthcare professionals. We concentrate on three key areas to concentrate our efforts on - funding for biomedical research, education and lobbying. Our aim is to find, fund and facilitate biomedical research into ME.

Invest in ME Research want to establish an international strategy of biomedical research into ME and establish a UK and European Centre of Excellence for biomedical research into ME. Help us make ME an illness which is properly understood and where adequate funding is provided for biomedical research into ME allowing treatments and cures to be found.


Use Our Website

Research

Our research strategy and the research funded by the charity

Information

Information and articles about ME

Conferences

Our annual international Colloquiums/Conferences

Fundraising

Details of our fundraising activities and how to help us

Let's Do It For ME

Patient-driven campaign to raise awareness and vital funds for research into ME

About Us

More information about the charity

News

Current and archived news from the charity

Centre of Excellence for ME

Our proposal for a UK Centre of Excellence for ME

Education

Useful educational aids for ME awareness

European Collaboration

Founder member of the European ME Alliance (EMEA) – working together across Europe

Recent/Upcoming Events

Organised by Invest in ME Research
#TtF - Thinking the Future - Early Career Researcher Conference in London - on 28th May 2019. More details here.
#BRMEC9 - our ninth international Biomedical Research into ME Colloquium - held in London - on 29th - 30th May 2019.
Invest in ME Research #IIMEC14 Pre-Conference Dinner. More details here .
#IIMEC14 - our fourteenth ME international conference in London - on 31st May 2019 at One Great George Street. More details here.
The European ME Alliance (EMEA) Annual General Meeting for 2019 - hosted and arranged by Invest in ME Research. EMEA.

A Centre of Excellence for ME

Building a solid foundation for future biomedical research into ME

"....with the other expertise and facilities located at the Norwich Research Park, puts it in a very good position to lead a UK and European Centre of Excellence for biomedical research for M.E. to provide possible prevention and solutions."

- Professor Ian Charles Director of Institute of Food Research and Head of Quadram Institute

The European ME Alliance

Invest in ME Research is a member of the European ME Alliance (EMEA)

The European ME Alliance is a grouping of European organisations who are involved in supporting patients suffering from myalgic encephalomyelitis and are campaigning for funding for biomedical research to provide treatments and cures for ME.

www.euro-me.org




Last Update September 2018

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Contact Us

  • Invest in ME Research Charity Nr. 1153730

  • Address: PO Box 561 Eastleigh Hampshire SO50 0GQ

  • Phone: 02380 643736 / 07759 349743

  • Email: info @ investinme.org

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