Welcome to the INVEST in ME community

Who we are
We are an independent UK charity campaigning for bio-medical research into Myalgic Encephalomyelitis (M.E.), as defined by WHO-ICD-10-G93.3.
We have links nationwide and also internationally.

Our aim is to bring together like-minded individuals and groups to campaign for research and funding to establish an understanding of the Aetiology (causes), Pathogenesis (harmful effects) and Epidemiology (the pattern of distribution of a disease through a population) of M.E. This should lead to the development of a universal "Thumb-Print Test" that can confirm the presence of M.E. and, subsequently, medical treatments to cure or alleviate the effects of the illness.

Invest in ME want to establish a national strategy of biomedical research into M.E.

Please join us and help make M.E. an illness which is properly understood and where adequate funding is provided for biomedical research into ME allowing a treatment and cure to be found.



The ME Information Centre
We wish to make this an easy destination to visit to find out anything about M.E. that you would like to know. Whether you are a sufferer, a parent/carer, a person involved in the media (see our Press pages) or somebody who would like to know more then visit our Information Centre for an insight into ME.



The Tragedy of ME
The effects of ME are apparent to any M.E. sufferer and their carers/parents.  Here is a sample of stories from M.E. sufferers which illustrates the sadness, and the reality, behind this illness. It also shows the positive approach of M.E. sufferers and serves to dispel any notions of depression as a causative feature of M.E., something which often accompanies many of the less-informed handouts given to, or by, the media. Meet ME - some of the tragic but hopeful stories concerning M.E.



Can you Help?
The answer is almost undoubtedly YES!
If you suffer from M.E. then join us - we are sufferers and carers of ME sufferers ourselves - contact us now for more information on how we can work together to make a difference.
If you are a parent of a child with M.E. then we know what you are going through - help us to help you to do more than just cope.
The contacts page allows us to know about you. Also - sign up for our newsletter - click here for more details.



Ideas?
 There is no monopoly on a good idea to raise funds for biomedical research - go to our Ideas Factory page and contact us with your idea.
If you want to browse more use our site map to show which sections we have and so limit the effort required to find some information.


ME-baY
Use our ME-bay to auction and fund biomedical research into ME. See our IIME store area.

 

 

NEWS FROM IiME

ME Awareness Month
May is ME Awareness Month- click on title above.
>> Press Release <<


Welcome to London
International ME/CFS Conference 2008
3rd Invest in ME International ME/CFS Conference - click here
Sub Grouping & Treatments for ME/CFS
CPD Accredited ME/CFS Conference


Conference News
The Chief Medical Officer and the Medical Research Council will be represented at the IiME conference.

Sponsor a GP Discount

An opportunity for ME Support groups and local healthcare staff to work together - click here.

flyer

poster
 

Journal of IiME
The Conference edition of the Journal is about to be published - click here.


ME Book Project 'Lost Voices'
IiME's new project  - click here

 


Past International ME/CFS Conferences
 

Click here for conference review of the 2007 London conference.

See clips from 2-day 2007 Conference DVD


Order 2-day 2007  Conference DVD here


Click here for pictures and feedback from the IiME 2006 ME conference.
 

Quotable Quotes
Quotes on ME are available in a new booklet - order here.

 

Severe ME
From the ME Conference 2006 DVD - Severe ME as shown from Norwegian TV channel NRK's Puls programme.

IiME and Meridian ITV join forces to publish the Meridian interview of ME patients. ME as it is - one of the best media pieces on ME. Click here.


Essential investigations for PWME
From our January newsletter - testing for a standardised set of inflammatory biomarkers rejected by NICE-
click here 


Canadian Guidelines
46p each (+p&p)Invest in ME have been given the rights to distribute the Canadian Consensus Guidelines in the UK
- click here. Contact IiME to purchase.


facebook and IiME
Join our facebook group - click here


Letter from America
Pat Fero's update on the WPI-click here

 
SOPHIA MIRZA
Read Sophia's story, as told by her mother, Criona.
Share thoughts of others - click here.
See the ITV programme on Sophia-click here.
The Inquest summary is here with translations into Danish, German, Finnish & Spanish

NICE GUIDELINES
NICE have published their official Guidelines for CFS/ME.
For Invest in ME's response - click here


IiME previously published a 38,000 word response to the NICE Draft Guidelines for CFS/ME - in PDF here  (our Nice pro-forma here)
Margaret Williams' comments here
Invest in ME's submission to Health Select Committee on NICE-click here

ME Standards - ME Clinics
From our August newsletter - a start on establishing basic protocols and standards for ME - what we need and what we don't need from ME Clinics. click here.
 


DLA and ICB Statistics
From our August newsletter - statistics on DLA and IB for pwme - click here.


The Info Centre Library
Includes two booklets from Dr. Byron Hyde.

The Nightingale Definition of ME - produced for the Gibson inquiry and the IiME ME/CFS Conference 2007 - click here.
And Dr. Byron Hyde's little red booklet of What is ME - produced for the Invest in ME Conference 2006 Click here


CBT, GET and FINE Trials
Saying
NO to CBT

Forced to accept CBT for a neurological illness? Consider these points.


Experiences of Graded Exercise
One person's experience of GET.

FINE Trials Experience
The FINE trials and the PACE trials seem to be the two ugly sisters of MRC policy on ME. Read one participant's experience of these costly trials (here).


Breakthrough in Norway
Norwegian government announces new policy to ME - here. Read of Vaccines and ME link in Norway - here.


Topic of the Week - HHV-6 Virus
A brief introduction to this subject - click on title.


The GIBSON INQUIRY
The Gibson Inquiry published here. Read IiME response and comments here.


Has Your MP Signed UP?
Check our ME & My MP campaign to email or write to every MP in the UK asking for their support for biomedical research funding for ME. See Norman Lamb's parliamentary questions tabled after contact with IiME.


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