Energising Research into ME ME Awareness



Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS), as defined by WHO-ICD-10-G93.3. and promoting better education about ME.

Invest in ME Research is run by volunteers - patients or parents of children with ME - with no paid staff.

Overheads are kept to a minimum to enable all funds raised to go to promoting education of, and funding for biomedical research into, ME.

The charity decided early on that biomedical research into ME was crucial in order to make progress in treating this disease. We also decided that education of healthcare staff, the media, government departments, patient groups and patients was to be a priority.

The charity's objectives are to initiate, maintain and augment a strategy of high-quality biomedical research into ME, to provide education about ME, and to raise awareness of the effects of the disease on patients and families.

We are a small charity but with a growing number of supporters who have big hearts - and a determination to get the best possible research to be carried out to find the cause of myalgic encephalomyelitis and develop treatments.

We have links nationwide and also internationally.

Invest in ME Research is a founder member of the European ME Alliance (EMEA), a collaboration of European national charities and organisations.

We do not receive, and have never received funding from government or government organisations.

We do believe that the seriousness of the situation regarding ME makes it necessary for governments to provide "ring-fenced" funding for bio-medical research in to ME (as was provided for HIV/AIDS) in order to address the need for development of diagnostic tests and remedial treatments.

We believe governments should standardise on usage of the Canadian Criteria for diagnosis so that there is an agreed basis (noting that evolutionary improvement would be welcomed).

We believe governments need to not only endorse and adopt, but officially promote the World Health Organisation classification of ME as a neurological illness, as defined by ICD-10-G93.3, separate from illnesses related to mental health classified under ICD-10-F48, in order to provide the distinction of the neurological disease.

We believe that governments should provide a national strategy of biomedical research into ME to produce treatments and cures for this illness.

The charity organises an annual research Colloquium and conference regularly attracting delegates from over 15 countries and funds research at Quadram Institute Biosciences/University of East Anglia and University College London as well as influencing collaboration elsewhere, in UK, Europe and beyond.

Our conferences and colloquiums were organised from the beginning in order to provide a platform for research and a means of facilitating education about ME.

In order to bring the best education and research to bear on ME and to find and facilitate the best strategy of research into this disease the charity welcomes support for our work.

Our aim is to bring together like-minded individuals and groups to campaign for research and funding to establish an understanding of the aetiology, pathogenesis and epidemiology of ME. We hope this will lead to the development of a universal diagnostic test(s) that can confirm the presence of ME and, subsequently, medical treatments to cure or alleviate the effects of the illness

Our efforts are focused on setting up a UK Centre of Excellence for ME which will provide proper examinations and diagnosis for ME patients and a coordinated strategy of biomedical research into ME in order to find treatment(s) and cure(s) - http://www.cofeforme.eu

On the right of the page we have a number donation buttons which direct funds to help the charity cover the costs of conferences and research meetings and the general running of the charity or to augment ring-fenced funds for specific research projects.
We thank you for considering supporting us.

Use Our Website

Research

Our research strategy and the research funded by the charity

Information

Information and articles about ME

Conferences

Our annual international Colloquiums/Conferences

Fundraising

Details of our fundraising activities and how to help us

News

Current and archived news from the charity

About Us

More information about the charity

Centre of Excellence for ME

Our proposal for a UK Centre of Excellence for ME

Education

Useful educational aids for ME awareness

Upcoming Events

#BRMEC8 - our eighth international Biomedical Research into ME Colloquium - held in London - on 30th - 31st May 2018. More details here.
Invest in ME Research #IIMEC13 Pre-Conference Dinner
More details will appear here later Click here.
#IIMEC13 - our twelfth ME international conference heldin London - on 1st June 2018 at One Great George Street. More details here.