Another Target Reached
Mainstreaming Finding Funding Facilitating Fasttracking Targeting Research into ME
"....... a hundred acorns are sown in silence by an unnoticed breeze."
Although Invest in ME Research has been highlighting plans to establish a Centre of Excellence for ME for many years, and although our supporters have been raising funds for the UK rituximab trial since we announced plans for that in 2013, it is perhaps only now being seen by many more people that the UK Centre of Excellence for ME is not only the best way forward to make rapid progress but has also become a major factor for European and international research.
We are pleased to announce that another target for our crowdfunding campaign for a strategy of biomedical research into ME has been reached.
This update to our gut microbiota and related projects fund being performed at the UK Centre of Excellence for ME hub in Norwich Research Park brings the total raised so far for projects there to £200,000.
The research found, funded and facilitated by Invest in ME Research is the result of dedicated, generous and determined supporters who have not just given money but, also huge amounts of time and effort toward helping us change the direction of research into ME in UK and Europe.
The latest target has allowed us to fund two PhD studentships currently undertaking research at the Centre of Excellence hub in Norwich Research Park and allowed us to decide to commit to the future funding of another PhD at the Centre.
IiMER Chairman Kathleen McCall says -
In just a few short years all of those who have contributed to our efforts and research funds have provided a different way forward, an alternative to years of neglect of ME by the establishment organisations.
This is another major achievement from resourceful and visionary supporters - patients, carers, families and friends.
It is just so inspiring to witness what our supporters have done.
Thank you everyone for making a difference by helping us move research into ME forward.
Our overall goal is to fund a continuing foundation of
biomedical research in a Centre of Excellence for ME which allows research hypotheses to be created and tested and facilitates
and establishes further international collaboration in research - with an urgency that reflects the needs of this situation.
International collaboration is not something that we have just discovered and promoted for the sake of looking good.
We have been publicising this need for many years and our international biomedical research into ME Colloquiums in London have been geared to establish, facilitate and promote this collaboration.
By maintaining a regular annual intake of new PhDs and post-docs we will enable real progress to be delivered and international collaboration and joint funding to be augmented.
The plan is to perform the UK rituximab trial - working with the researchers from Haukeland University Hospital Bergen to help
make an effective and useful research project.
The study with severely affected [Autoimmunity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)] was formally registered and described earlier
We have other plans in the pipeline which can be implemented, funds permitting.
More about this research is available here.
We will continue to create possibilities for researchers to interact and we will continue to work with
our European ME Alliance colleagues in supporting their events.
Already later this year researchers funded by IiMER will be attending conferences in Iceland and Sweden - thanks to our great EMEA colleagues.
We work with RME-Sverige in linking our research meetings so that more benefit can be obtained and a continuation of discussions is delivered.
We have many ideas still and even a lot of the facilitation for research which has been created by the charity is leading to beneficial developments elsewhere, in other countries or in other forms.
Yet recent events demonstrate again to us that we still cannot rely on the government or establishment organisations to address the serious lack of funding for research into ME.
Research is the key to everything. At the end of the day no amount of demonstrations, events or publicity will mean anything if we do not begin research. This has to be the priorty.
We believe we have an answer to many of the problems surrounding research into ME and the more support we have then the quicker the progress will be to determining the cause(s) of ME and to developing treatments.
Our great thanks to all of our supporters and friends and families who have, and are taking part in this great effort to provide the means to discover the cause(s) of ME and develop treatments.
We welcome continued support for the future.
Please join our CofEforME support campaign - click here
Our mascot, Professor Ldifme - created by Jan Laverick
from the Let's Do It For ME team -
has served us well these past years - and now has his own instagram account.
Ways to help us are shown in the column at the top right of this page.