Donations Update for NRP Projects

Mainstreaming Fasttracking Research into ME

A new update to our gut microbiota and related projects being performed at the UK Centre of Excellence for ME in Norwich Research Park brings the total raised so far for projects there to £185,000.

The research being performed at the Norwich Research Park and at UCL in London - funded by the charity - is the result of our supporters making huge efforts to create a solid foundation of high-quality biomedical research into ME - filling a void which has existed for a generation.

We are now funding future phases of the work to build the Centre of Excellence for ME foundations.

More about this research is available here.

A foundation of biomedical research is now established with a mixture of PhD students, medical students and post-docs/research assistants forming a foundation of core research which will focus on aetiology and development of treatments for this disease. More details here
Thanks to our supporters this astonishing progress made in funding high-quality research and the international links which are being and have been created by the charity are leading to a gathering momentum in research which even the most cynical of government or research council policies will not be able to stop.

With enough support we can achieve major progress - and quickly.

Please join our CofEforME support campaign - click here

Our mascot, Professor Ldifme, was created by Jan Laverick.

Ways to help us are shown in the column at the right of our page.


Dr Ian Gibson's and Elaine Sherriffs book - Science, Politics, .......and ME - so slearly descibes all the machinations and prejudice that has compromised research into ME in the past, and continues to do so.

The book is described here and can be purchased from Amazon at this link.



Our 2-day Biomedical Research into ME Colloquium 7 in London (our seventh annual research colloquium) continues our attempts to promote high-quality biomedical research with international collaboration.

With involvement from the major research centres around the world and the NIH and CDC we will continue to force progress in understanding this disease so that books such as Science, Politics, .......and ME will no longer need to be written.





Our Current Funding Streams

Please click on the progress circles below to see the options to contribute to these funds and donate if possible.

CofE for ME
B-cell/Ritux

Trial
Gut Microbiota
Medical

Students

Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS), as defined by WHO-ICD-10-G93.3. and promoting better education about ME.

Invest in ME Research is run by volunteers - patients or parents of children with ME - with no paid staff.

Overheads are kept to a minimum to enable all funds raised to go to promoting education of, and funding for biomedical research into, ME.

The charity decided early on that biomedical research into ME was crucial in order to make progress in treating this disease. We also decided that education of healthcare staff, the media, government departments, patient groups and patients was to be a priority.

The charity's objectives are to initiate, maintain and augment a strategy of high-quality biomedical research into ME, to provide education about ME, and to raise awareness of the effects of the disease on patients and families.

We are a small charity but with a growing number of supporters who have big hearts - and a determination to get the best possible research to be carried out to find the cause of myalgic encephalomyelitis and develop treatments.

We have links nationwide and also internationally.

Invest in ME Research is a founder member of the European ME Alliance (EMEA), a collaboration of European national charities and organisations.

We do not receive, and have never received funding from government or government organisations.

We do believe that the seriousness of the situation regarding ME makes it necessary for governments to provide "ring-fenced" funding for bio-medical research in to ME (as was provided for HIV/AIDS) in order to address the need for development of diagnostic tests and remedial treatments.

We believe governments should standardise on usage of the Canadian Criteria for diagnosis so that there is an agreed basis (noting that evolutionary improvement would be welcomed).

We believe governments need to not only endorse and adopt, but officially promote the World Health Organisation classification of ME as a neurological illness, as defined by ICD-10-G93.3, separate from illnesses related to mental health classified under ICD-10-F48, in order to provide the distinction of the neurological disease.

We believe that governments should provide a national strategy of biomedical research into ME to produce treatments and cures for this illness.

The charity organises an annual research Colloquium and conference regularly attracting delegates from over 15 countries and funds research at Quadram Institute Biosciences/University of East Anglia and University College London as well as influencing collaboration elsewhere, in UK, Europe and beyond.

Our conferences and colloquiums were organised from the beginning in order to provide a platform for research and a means of facilitating education about ME.

In order to bring the best education and research to bear on ME and to find and facilitate the best strategy of research into this disease the charity welcomes support for our work.

Our aim is to bring together like-minded individuals and groups to campaign for research and funding to establish an understanding of the aetiology, pathogenesis and epidemiology of ME. We hope this will lead to the development of a universal diagnostic test(s) that can confirm the presence of ME and, subsequently, medical treatments to cure or alleviate the effects of the illness

Our efforts are focused on setting up a UK Centre of Excellence for ME which will provide proper examinations and diagnosis for ME patients and a coordinated strategy of biomedical research into ME in order to find treatment(s) and cure(s) - http://www.cofeforme.eu