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There are probably 10 000
Norwegians suffering from ME.
The major problem for a
lot of people with ME and their relatives is that they feel they aren’t believed
in meetings with health services, and that they are not getting the service they
need.
There is an enormous need
for knowledge about this illness. We must concentrate on research and on
education of healthcare staff.
In addition there must be
established a service provision which lays down the right to get the necessary
consideration that many ME sufferers are dependent on, including those affecting
the senses (light, sound), and which emphasises the patient’s own
experiences of the illness.
There is also a need to ensure competent health and care services in all
municipalities. I understand that the government has received a
professional recommendation about ME from the Social - and Health Directorate
recently. What initiative shall the government set in motion both immediately
and over time to ensure appropriate services for people with ME?
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