Guestbook Gallery 2008

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Sanda

3 December 2008

I was an artist when I got ME, but it was called CFS in the US.  We are now using CFS/ME.  I have ME severely.  I do art as can.  I  have been networking as an artist since pre-diagnosis.  I am online for less than a year, although now a senior citizen.  It is hard to learn this new tech toy with CFS/ME, but I really love getting around the world via my computer.

Nicky

19 June 2008

I was diagnosed when I was 13 yeas of age after the doctors had gone through all the different possibilities but in the first few years was fine. Now is the harder time. The illness causes intense muscle spasms which my fantastic partner helps to care using relaxation techniques.

The main symptoms are excruciating headaches that make even blinking feel like the hardest task, mobility and intolerances to light, sound, foods of certain contents  the awkward symptoms of IBS. But here I'm rambling. I bet anybody has read this same story a thousand times, if like me you are still searching for answers. But I wanted to tell you all that even when you are feeling sick, sweaty  confused , sleepy angry or moody  there is one thing that you should do .... STOP,  look at the person who is helping you. Is that the person who sees  what happens to you all the time and never leaves your side??? Is it the person who, even when you're angry and frustrated, never shouts at you ..... I bet it is because I have one of those people. He makes me realise that we can keep going, take the good with the bad and keep going. Keep living.

WE MAY HAVE ME but we can do ANYTHING as long as we have determination.

Lee

7 February 2008

It all started in 2005. I had recently got engaged and Life looked good.
One day though I just collapsed at work; I thought I had simply fainted due to a hot room.
When this continued I went to my GP. I told him every time I walked it felt like going through treacle.

It took 18 months before I was diagnosed with ME. I was told that I dropped because I pushed myself so hard.

I have tried many treatments but none really have made a difference.

My ME has affected by marriage and my work. People just look at me and say you look well so you must be well!!

It is thanks to websites like this that I have the encouragement to fight on!!


Melanie

26 January 2008

Hi there..

I have just read about your book (ME Book Project), what a good idea!
I have had M E for nearly 4 years now and I can say that it has devastated my life, everyday just feels like walking against the wind.

Where once I could participate, now I can only observe. I have become  a very diluted form of who I once was.

Well done for trying to highlight this illness.

I think that one of the worst aspects of it is the general lack of understanding surrounding it and of course the misconception that you are probably just lazy!

Good Luck........Kind Regards,