David's Story  

He started to deteriorate from then and ended up in hospital for a few weeks, test after test and as usual everything came back clear. He was referred to a rheumatologist and she said he was fine and to send him to school.  I was dismayed by this as me and my family could all see that David was a very physically ill little boy…..... read more

Annabel by Richard Senior  

Even if it had been the right treatment, by that time it was too late: so many years of neglect, disbelief, wrong medication, wrong diagnoses; so many times referred to psychiatrists, who to a man sent her away because they couldn’t find anything wrong – with a prescription for an anti-depressant just in case…..... read more

Birgitte by Leiv  

At this point in time Birgitte was able to sit in a wheel chair, could use the toilet and could move her arms and legs. 

However,  she is put under conditions of extreme stress.  Due to total lack of knowledge and competence of this illness the nurses and the nursing home doctor still think she has a psychiatric illness.  The treatment manual from the Norwegian ME organisation is, therefore, not being used and the patient is getting more and more ill...... read more

Sophia by Criona Wilson  

The following story has been submitted to Invest in ME to inform those persons who have a significant interest in resolving ME-related matters as to the alleged problems which can occur with a psychiatric-based approach to ME. ..... read more

Carly by Sheila Barry  

A speech given by Shelia Barry at the launch of the book 'Skewed' by Martin J Walker. Sheila is an ordinary mother who's daughter suffered from ME for many years before taking her own life. Sheila has endeavoured to set up a register of suicides directly caused by ME and the devastating effects it has on people's lives. The number of suicides, suicidal attempts and serious self harm are high among people with ME, yet there are no official figures and little official or public recognition of the enormous impact ME has on peoples' lives..... read more

Casey by Pat Fero  

Casey was diagnosed with CFS at age 9 and again at age 15. It caused him to feel weak, unable to think, and exhausted. He was plagued with headaches, stomach problems, and had major sleep disorder among a list of daily symptoms.  Casey persevered and did not want people to know his condition. Early on, he knew that medical help was unavailable and furthermore, he was met with disbelief in the school and in the doctor’s office...... read more