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Jane Colby is a former head teacher,
a member of the National Association of Educational Inspectors Advisers and
Consultants, co-author of the largest study to date of ME/CFS (Journal of
Chronic Fatigue Syndrome 1997) showing that this condition is the biggest cause
of long-term sickness absence from school, and a medical and educational author
for professional journals and patient literature.
As a member of the Chief Medical Officer’s Working
Group on CFS/ME, she played a major role in writing Chapter 5 of the subsequent
Report (DOH 2002).
She has been commissioned to write the first book for
the education profession on teaching children with ME/CFS. She is joint
author of ME/CFS Guidelines for Educational
Psychologists (the first such guidelines) published by The Young ME Sufferers
Trust in September 2005.
The Trust is the longest-running
support organisation for children and young people with ME and specialises in
education. It runs an Advice Line, a Professionals Referral Service for doctors,
teachers and others, and produces VISION, an informative magazine in which
children are encouraged to express their views. The Trust's publications are
available free of charge on its website www.tymestrust.org
The Trust’s “Tymes Trustcard” is a
pass card for children with ME in school, endorsed on its launch by Education
Minister Baroness Ashton and by the Secondary Heads Association and supported by
Lord Clement-Jones CBE and Earl Howe. |
