 About
Us...
Invest in ME
Invest in ME was set up with the objectives of making a change in how ME is
perceived and treated in the press, by health departments and by healthcare professionals.
We aim to do this by identifying the three key areas to concentrate our efforts
on in order to raise funding for biomedical research - education, publicising
and lobbying. Invest in ME aims to provide the coordination of events and
activities in these areas. This will provide the focus and funding to allow
biomedical research to be carried out.
Our aim is to bring
together like-minded individuals and groups to campaign for research and funding
to establish an understanding of the aetiology, pathogenesis and epidemiology
of ME. We hope this will lead
to the development of a universal diagnostic test
that can confirm the presence of ME and, subsequently, medical treatments to
cure or alleviate the effects of the illness.
We believe that the seriousness of
the situation regarding ME makes it necessary for governments to
provide "ring-fenced" funding for bio-medical research in to ME (as was
provided for HIV/AIDS) in order to address the need for development of diagnostic tests and
remedial treatments.
We believe
governments should standardise on usage of the Canadian Criteria for diagnosis, so that there is an agreed basis
(noting that evolutionary improvement would be welcomed).
We believe
governments need to not only endorse and adopt, but officially promote the World Health Organisation classification of ME as a neurological illness,
as defined by ICD-10-G93.3, separate from the psychological illnesses classified
under ICD-10-F48, in order to provide the distinction of the neurological disease.
We believe that governments should provide a national strategy of biomedical research into
ME to produce treatments and cures for this illness.
Contact
Last Updated:
16/11/2009
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