Information Centre Library

This section contains a selection of relevant links and articles relating to ME.

 

Dr. Martin Lerner's Energy Index Performance Scale

At our conference in May Dr Martin Lerner not only provided unique data in his impressive presentation but he also discussed his Energy Index Points Score Table which is an easy way for healthcare staff to monitor a patient's capability levels thus helping avoid over-exertion and monitoring of progress.

Dr Lerner's presentation can be seen on the conference DVD. Dr Lerner has given us permission to display this on the IiME web site - click here.

More information is available from Dr Lerner's site at http://www.treatmentcenterforcfs.com/.

from the December 2008 Newsletter

 

ME/CFS as a Mitochondrial Disease

Dr David Bell has been involved in ME/CFS for many years and in this extract from his Lyndonville newsletter he explains mitochondrial disease and the type of secondary mitochondrial disease ME/CFS patients experience - the inability to sustain activity. He clearly illustrates why ME/CFS has nothing to do with deconditioning.

from the Journal of IiME Volume 2 Issue 1

 

Caring for Seriously Ill ME Patients

An article which provides a good insight into the difficulties in caring for this group of ME patients in institutions. The normal rules of rehabilitation do not apply to ME patients and it is important to take the lead from patients. Patient experiences are very important and should be listened to.

from the Journal of IiME Volume 2 Issue 1 - by Dr Sidsel Kreyberg

 

Wessely's Way: Rhetoric or Reason?

An article from Margaret Williams and Professor Malcolm Hooper detailing the continuing misinformation being presented about ME.

April 2008 - by Margaret Williams/Malcolm Hooper

 

Essential investigations for people with ME

Comments on “Identification and treatment of symptoms associated with inflammation in medically ill patients”.

January 2008 - by Margaret Williams

 

Exploratory Subgrouping in CFS: Infectious, Inflammatory, and Other

From the Journal of IiME Vol 1 Issue 1

May 2007 - by Dr. Leonard Jason

 

The physiology of exercise intolerance in patients with myalgic encephalomyelitis (ME) and the utility of graded exercise therapy

From the IiME Response to the NICE Draft Guidelines

November 2006 - by S. Pierce and P.W. Pierce

  CBT, GET And Human Rights:

From the IiME Response to the NICE Draft Guidelines.

October 2006 - by R. Mitchell and V. Mitchell

  Statistics on DLA and IB for PwME

From the August newsletter
Statistics on Disabled Living Allowance and Incapacity Benefit for UK people with ME.

   
  Letter from America

Pat Fero's update on the Whittemore-Peterson Institute - August 2007

  Dr Byron Hyde's Nightingale ME Definition

Produced by Dr. Hyde for the Gibson Inquiry and the Invest in ME - ME/CFS  Conference 2007.

A description of what ME is and what it isn't.  Click on the image to the left open this very useful document.

Click here to read more.

  What is ME - What is CFS? Information for Clinicians and Lawyers

December 2001 by E.P.Marshall, Margaret Williams and Malcolm Hooper

Click here to read more.

  Saying NO to CBT  

Designed to support M.E. sufferers who choose not to attend the current NHS Chronic Fatigue Syndrome/Myalgic Encephalomyelitis clinics which have been set up across the country.

Click here to read more.

  Invest in ME Conference presentations in Journal of Clinical Pathology  

The presentations from the International ME Conference in London during May 2006 have now been adapted and published in the Journal of Clinical Pathology.

Click here to read more.

 
Dr. Byron Hyde's Little Red Book

Produced by Dr. Hyde for the Invest in ME - ME Conference 2006.

A description of what ME is and what it isn't.  Click on the image to the left open this very useful document.

  Canadian Guidelines Accepted by NHS ME Doctors

Two NHS doctors treating ME patients have endorsed the Canadian Guidelines. Click here to read more.
  Advance in the Biomedical Investigation of M.E
From MERGE/Neil Abbot and Dr. Vance Spence

Many thanks to ME Research UK for allowing us to print this upbeat status of progress in biomedical research. The last paragraph of this article is telling and describes how we feel at IIME - working with the national biomedical charity for ME. Click on MERGE for a link to their excellent site.

  Canadian Diagnostic Criteria

From the Journal of Chronic Fatigue Syndrome
A description of the important Canadian definition for diagnosis of ME.

  Professor Malcolm Hooper - Engaging with ME

From Invest in ME articles
A summary of the lecture by Professor Hooper organised by Invest in ME in 2005.

  Dr J Gordon Parish, Patron of ME Research UK
A Review of The Clinical Syndrome Variously Called Benign Myalgic Encephalomyelitis, Iceland Disease and Epidemic Neuromyasthenia by ED Acheson (American Journal of Medicine, 1959)
Epidemics with ME.

 

Rather than repeat all other documentation on research it was felt better to link to ME Research UK's site (with their permission) to show their Research Database of publications about ME. Click on the link here to ME Research UK Research Publications Database

        Last Updated: 2/11/2008