News Archive

These are news items which have appeared in our NEWS FROM IiME box on the home page.
Click on the year number below to go to a specific year.
2012 2011 2010 2009 2008 2007 2006 2005

2011


December 2011
 

Defending the Indefensible

Professor Simon Wessely attempts to defend what has already been shown to be indefensible, namely his own beliefs about the nature of ME/CFS, including his belief that graded exercise therapy (GET) has an impeccable safety record” - Margaret Williams explains why this is indefensible

December 2011
 

 

Statistics and ME

Statistics and ME - by Professor Malcolm Hooper

November 2011
 

 

“Grey” Information about ME/CFS Part 3: 1994

There is a wealth of important information about ME/CFS in the grey literature that has been largely ignored by those intent on denying the existence of ME/CFS as an organic disorder.

Statistics and ME - Information about the article “Statistics and ME” by Professor Malcolm Hooper

November 2011
 

 

IiME Statement on ME

ME is not chronic fatigue. So why does IiME use ME/CFS sometimes?

November 2011
 

 

Using Cardiopulmonary Exercise Testing to Evaluate Fatigue and Post-Exertional Malaise in ME/CFS

The absence of reliable diagnostic laboratory tests or biomarkers presents significant problems for persons with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), treating physicians, and the ME/CFS research community alike. Typically ME/CFS diagnoses rely on self-report measures where patients describe the extent and duration of their fatigue and attendant symptoms either verbally or on a questionnaire.

October 2011
 

 

Bursting Our Bubble - Norwegian Style

Ground-breaking research from Norwegian oncologists

October 2011
 

 

7th Invest in ME International ME/CFS Conference 2012 Announced

The 2012 IiME Biomedical Research Conference is on 1st June in Westminster, London

October 2011
 

 

Invest in ME Input to APPG for ME

IiME input to the recent APPG meeting

October 2011
 

 

PACE Trial - a Summary of Failure

Extracted from Doug Fraser's Expression of Concern - a summary of why the PACE Trial is flawed

September 2011
 

 

UK Premiere of Voices from the Shadows

Voices from the Shadows is the most important and significant film on paediatric ME that has ever been produced"

–  Professor Leonard Jason

September 2011
 

 

A Question of Integrity

Mainstream media are at odds with patient experiences. The 2011 summer barrage of anti-ME articles demonstrates that the establishment is making a coordinated response to the anger and frustration of ME patients who see flawed science keeping them ill.

September 2011
 

 

Conference Addendum - BMJ Comments

The BMJ had been invited by Invest in ME as guests so that they could become acquainted with the latest biomedical research into ME. The BMJ commented on ME after the conference. IiME's views on those comments.

September 2011
 

 

September Newsletter Published

The September Newsletter is available.


September 2011
 

Complaint to Press Complaints Commission

Invest in ME have made a complaint to the Press Complaints Commission regarding a spate of misleading and biased articles in appearing in UK newspapers.


August 2011
 

Observer Article on Professor Wessely: Professor Hooper’s Response

Professor Hooper submitted this response to the Observer following that newspaper's publication of an article detailing the viewpoint of Professor Simon Wessely.


August 2011
 

Let's Do It For ME - Fundraising Thermometer

Let's do it for ME! - The current figure raised for a biomedical research and examination facility will be updated weekly.

The thermometer will show our progress on reaching the initial research funding goal.


August 2011
 

Gurli Bagnall

Sadly Gurli passed away. Gurli was a dedicated advocate for ME patients and wrote eloquently to denounce the misinformation and dark forces at work by vested interests that corrupt and distort the perception of myalgic encephalomyelitis.

 


August 2011
 

Letter to the Author of "New GP Guidelines for Chronic Fatigue Syndrome"

In Invest in ME's view the RCGP guidelines contain potentially dangerous and negligent views about this disease. IiME have written to the author of an article in the RCGP journal.


August 2011
 

It's A Funny Old World

Sound-bite healthcare provided by the PACE Trial. An alternative interpretation.


August 2011
 

Ineffective NICE Treatments for ME

ME/CFS is (bio)logically explainable; Standard treatment is ineffective, and even potentially harmful


August 2011
 

Let's Do It For ME

Created and set up by IiME supporters - a campaign to support real change in the way ME is diagnosed, treated and researched


August 2011
 

IiME 2011 Conference Addendum

More notes from IiME regarding the May conference events


August 2011
 

IiME Conference DVD Production

How we produce the conference DVD.


July 2011
 

Burst Our Bubble

We shall continue our Burst Our Bubble campaign to raise awareness of ME and the need for biomedical research which is adequately funded.


July 2011
 

Science or Psychiatry

New international consensus criteria for myalgic encephalomyelitis published


June 2011
 

The PACE Trial: An Expression Of Concern

A critique of the PACE trial by Douglas Frazer - "Essentially an unblinded trial, it appears to be falsely registered as a RCT, an example of “strawman design”, and published in breach of the Lancet's own requirements."


June 2011
 

More PACE Comments

Professor Malcolm Hooper’s Further Concerns About the PACE Trial Article Published in The Lancet.


June 2011
 

IiME Input to APPG Meeting on Children

Invest in ME has supplied the following to Annette Brooke, chair of the APPG for ME in advance of the APPG meeting on 22nd June 2011.


June 2011
 

IiME Input to DWP DLA Review

Invest in ME were asked to comment on the Department of Work and Pensions DLA reforms and offer the chance for supporters to participate. Here are our comments.


June 2011
 

EMEA Submission for DSM-V

European ME Alliance  submission to APA DSM-V Draft Proposals


May 2011
 

6th Invest in ME International ME/CFS 2011 Conference report

The conference report made by Dr Rosamund Vallings


May 2011
 

The Journal of IiME

The latest Journal of IiME - conference version - now available


May 2011
 

IiME's Second Awareness Month Newsletter

An update on conference news in ME Awareness Month 2011.

Click here.


May 2011
 

IiME Arrange for MPs to Meet with Researchers

IiME have arranged for researchers at IIMEC6 to meet with MPs prior to our conference on 20th May.

Also click here


May 2011
 

Earlybird Conference DVD Available for ME Awareness Month 2011

IiME have decided to fund a DVD of the conference and are offering an earlybird rate for May.

Also click here


May 2011
 

Invest in ME - Charity of the Month at London Business Matters - magazine of the London Chamber of Commerce

Invest in ME took out a full page ad in London Business Matters for ME Awareness Month.


May 2011
 

Action for ME and its latest links to the Insurance Industry

Disturbing evidence exists that the charity Action for ME (AfME) seems to be strengthening its links to the insurance industry, which may be to the potential detriment of people with ME/CFS (whose best interests the charity is required by The Charity Commission to represent) click here


May 2011
 

“Grey” Information about ME/CFS - Part II

There is a wealth of important information about ME/CFS in the grey literature that has been largely ignored by those intent on denying the existence of ME/CFS as an organic disorder.


May 2011
 

MAY Newsletter Published

There is a wealth of important information about ME/CFS in the grey literature that has been largely ignored by those intent on denying the existence of ME/CFS as an organic disorder.


May 2011
 

APPG to Meet Researchers

IiME have organised a trip to parliament by researchers at the IIMEC6 conference in May.


April 2011
 

“Grey” Information about ME/CFS

There is a wealth of important information about ME/CFS in the grey literature that has been largely ignored by those intent on denying the existence of ME/CFS as an organic disorder.


March 2011
 

Ignorance is not an option. Letter to the editor of the Lancet

In order to open the debate of the flawed research funded by the MRC and the misinformation about ME which is given so much free publicity Invest in ME wrote to the editor of the Lancet. We publish this letter for all to see.


April 2011
 

The Media and ME

People genuinely cannot understand how individuals who profess to be speaking up for the primacy of science can defend, let alone promote, such a transparently flawed study as the PACE Trial.


April 2011
 

ME Awareness Month 2011

Burst Our Bubble campaign for ME Awareness Month.

Also click here


March 2011
 

IiME Letter to RCPCH

Invest in ME wrote to RCPCH to question their definition of ME. We also invited the RCPCH chairman to IIMEC6 - the 6th Invest in ME International ME/CFS Conference 2011 on 20th May.


March 2011
 

DWP and the PACE Trials

The Department of Work and Pensions funded the PACE trials. Why?


February 2011
 

IiME Submits Response to the Lancet Regarding the PACE Trials

IiME submits a response to comments on the PACE Trials. the Lancet regarding the PACE trials


February 2011
 

IiME - Initial Statement on the PACE Trials

IiME comments on the PACE Trials.


February 2011
 

Professor Hooper’s Initial Response to the MRC PACE Trial Press Release hosted by The Lancet Update

Professor Malcolm Hooper responds to the PACE trials press release.


January 2011
 

IiME Statement on MRC Research

IiME comments on recent MRC Funding of Research into ME/CFS which was announced in January 2011.

2010


December 2010
 

Invest in ME statement on XMRV Research

Invest in ME believe that, despite all of the establishment attempts to downplay or ignore or discredit the latest biomedical research, proper science will prevail.


December 2010
 

European ME Alliance Calls for Europe-wide Blood Ban

The European ME Alliance Have Renewed Their Call for a Total Europe-Wide Ban on Blood Donation from People Diagnosed With ME/CFS.


December 2010
 

Twenty-five years of the Barts Fatigue Service

It seems increasingly apparent that, no matter the calibre and quantity of evidence that has long ago shown the Wessely School to be wrong about ME/CFS, their 25-year old mind-set remains set in stone.


November 2010
 

Allergies and Multiple Chemical Sensitivity in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

Multiple Chemical Sensitivity (MCS) is a well-documented component of ME/CFS due to the significant immune system disruption and dysregulation that since the 1980s has been documented in the disorder in peer-reviewed international journals (there are over 3,000 pages on MCS on the internet using one search engine alone).


November 2010
 

Prelude to the Party?

...it seems to be such a fun game not to measure objective levels of post-intervention improvement; why bother with actometers when the party-goers can rely on measures they created themselves and when actometry might even show a worsening of symptoms?....


November 2010
 

Evidence that the official UK position is that ME/CFS (or CFS/ME) is a neurological disorder

Despite this abundance of evidence that CFS/ME (or more correctly, ME/CFS) is a neurological disorder, it seems that those doctors who work for the insurance industry remain ruthless and unremitting in their determination to categorise it as a functional (somatic) disorder.


November 2010
 

Invest in ME Submission to NICE Review of Clinical Guideline (CG53)

IiME responded to the NICE deadline for comments on reviewing the NICE guidelines for ME.


November 2010
 

6th Invest in ME International ME/CFS Conference 2011

Conference pages are set up


November 2010
 

Complaint to Ethics Committee - The SMILE Study on Children

A letter from an IiME supporter regarding the trial of a business training programme on children.


November 2010
 

Research on XMRV Considered by UK Blood Services/Eligibility of people with ME/CFS to Donate Organs

Invest in ME have  written to the NHS Blood and Transfusion Service regarding two points.


October 2010
 

The ME Dilemna

Myalgic Encephalomyelitis [ME] is recognized by the WHO as a Neurological disease. Unfortunately, this recognition continues to be thwarted by influential Psychiatric “road blocks” against pure unbiased ME research.


October 2010
 

Knowledge or Belief

Is knowledge more useful than belief?  Not, it seems, where ME/CFS is concerned.

Why not?  Because where the Wessely School is now in relation to ME/CFS is little different from where it was 25 years ago – their beliefs remain static and they have resolutely not moved forwards in the light of knowledge.


October 2010
 

NIH - CFSAC Testimony from Pat Fero

Testimony submitted to the USA NIH CFS Advisory Committee October 2010 by Pat Fero.


September 2010
 

So near yet so far – from Mission Accomplished?

Notwithstanding, the way seems to be being paved by the Wessely School for further disparaging attacks on those scientists who have found retroviral involvement in some ME/CFS patients and for yet more dismissal of the significance of those findings.


September 2010
 

Dr Martin Lerner - An update on the management of glandular fever (infectious mononucleosis) and its sequelae caused by Epstein–Barr virus (HHV-4): new and emerging treatment strategies

 


August 2010
 

Memo to NICE

In addition to Professor Hooper’s formal complaint to the Medical Research Council about the PACE Trial on ME/CFS, there is the related matter of the failure of the National Institute for Health and Clinical Excellence (NICE) to pay heed to the same concerns and its failure to consider the available biomedical evidence when it produced its 2007 Guideline CG53 on ME/CFS.


August 2010
 

WPI Opening 21 August 2010

"Vision without action is merely a dream. Action without vision just passes the time. Vision with action can change the world."


August 2010
 

A Proposal for a UK Centre of Excellence Base for ME

A summary of information relating to a proposal which has been formulated by an Invest in ME steering group which has been formed to instigate the setting up of this facility.


August 2010
 

August Newsletter Distributed

August Newsletter Distributed


July 2010
 

American Journal of Biochemistry and Biotechnology

Invest in ME received an invitation from the American Journal of Biochemistry and Biotechnology for publication of all accepted articles presented at 5th Invest in ME International ME/CFS Conference 2010


July 2010
 

IiME Decline Invitation to Join BACME

Invest in ME will not apply to join BACME in its current form


July 2010
 

2010 Conference DVD Distributed

2010 Conference DVD now being distributed.

The cost is £12 and includes the full presentations from the CPD-accredited  conference plus a unique brain-storm session with some of the speakers.


June 2010
 

(bio)psychosocial model of ME Destroyed

Critique on the model for ME/CFS put forward by Harvey and Wessely in BMC article


May 2010
 

The Journal of IiME

The latest Journal of IiME - conference version - now available


May 2010
 

Research by Dr Martin Lerner

Subset-directed antiviral treatment of 142 herpesvirus patients with chronic fatigue syndrome - research by Dr. Martin Lerner et al. Dr Lerner presented at the IiME 2008 International ME/CFS Conference - http://www.investinme.org/IiME%20International%20ME%20Conference%202008%20-%20DVD%20Orders.htm.


May 2010
 

European ME Alliance (EMEA) - Dr. David Bell Euro Tour

The European ME Alliance member groups are arranging a Euro Tour by Dr. David Bell.


May 2010
 

ME Awareness Day Letter to Chief Medical Officer

For ME Awareness Month 2010 please support Invest in ME and biomedical research into ME. Buy Invest in ME wrist bands for Biomedical Research


May 2010
 

WPI Response to XMRV Criticisms

WPI Response to XMRV criticisms


May 2010
 

In support of the WPI - Dr David Bell appeals for funding for WPI

Dr David Bell's warning about the dangers from the establishment in employing known tactics to hamper the current work on XMRV by the WPI.


May 2010
 

ME Awareness Month 2010 - Support ME Awareness

For ME Awareness Month 2010 please support Invest in ME and biomedical research into ME. Buy Invest in ME wrist bands for Biomedical Research


April 2010
 

New Zealand Follows With Ban on Blood Donation

New Zealand is to follow the Canada Blood Service in banning ME patients from giving blood. Australia also has banned donations from ME patients.


April 2010
 

European ME Alliance (EMEA) calls for Europe-wide Ban on Blood Donation

The European ME Alliance members groups from across Europe have called for an immediate prohibition of blood donations from people with ME due to the risk of contamination of blood supplies


April 2010
 

IiME Letter to General Medical Council Regarding Myhill Case

Invest in ME have written to the General medical Council to urge them to be consistent in their approach to ME/CFS


April 2010
 

Invest in ME Submission to APA Regarding DSM-V Draft Proposal

Invest in ME Submission to APA DSM-V Draft Proposals


April 2010
 

Alison Hunter Memorial Foundation Becomes Sponsor of Invest in ME Conference 2010

The Alison Hunter Memorial Foundation become a sponsor of 5th IiME Conference


April 2010
 

Dr. Sarah Myhill Case with General Medical Council

The GMC are considering withdrawing the licence to practise from Dr Sarah Myhill


April 2010
 

New Letter to UK Secretary of State for Health

Invest in ME have followed up our letter to the Labour Minister for Health, Andy Burnham, (for which we have received no reply) with a reminder letter and questions on whether the UK government will consider banning blood donations from people with ME following Canada's decision to do that.


April 2010
 

Canada Bands Blood Donations from People With ME

Canada Blood Service has decided to prohibit people who have or have had ME from donating blood - read more

Sir Liam Donaldson - CMO 1998 - 2010
April 2010
 

CMO - A Testament to Failure

Above all others the office of the Chief Medical Officer in the UK ought to be there to protect the public. It says just this on the Department of Health web site - click here


February 2010
 

March/April Newsletter Distributed

Click here for the March/April 2010 newsletter


April 2010
 

Complaint Made to UK Medical Research Council

A letter from Professor Malcolm Hooper Regarding the PACE Trials sent to  the UK Medical Research Council - click here


March 2010
  Letter from America

Dr Mary Schweitzer has provided this commentary on the XMRV research -click here


March 2010
 

Invest in ME Letter to Secretary of State for Health

Following comments by Ann Keen MP (under-Secretary of State for Health) about ME Invest in ME have asked questions of the minister regarding ME and blood donations. Click here


March 2010
 

XMRV Research by WPI - Invest in ME Contribute to WPI UK Research

XMRV Research Project - Redirection of Funding. Invest in ME to fund WPI research.


February 2010
 

EMEA Invite Health Ministers/CMOs to London

The European ME Alliance (EMEA) invites Health ministers and CMOs in Europe to a London meeting. Click here


February 2010
 

IiME Comment on XMRV Research - Look to the End

The ground-breaking research performed by WPI/NCI/Cleveland Clinic has had its share of detractors - especially from some with vested interests in stopping biomedical research into ME or maintaining their status. IiME comment on XMRV research. Click here

House of Commons
February 2010
 

IiME Supporter Arranges Adjournment Debate

A supporter of Invest in ME has provided all the information about ME for her MP's Adjournment debate in UK parliament. Click here


February 2010
 

Letter to NICE

A Press Release from Professor Malcolm Hooper Regarding the PACE Trials and a complaint against the UK Medical Research Council - click here


February 2010
 

February Newsletter Distributed

Click here for the February 2010 newsletter

European ME Alliance
February 2010
 

Switzerland Joins European ME Alliance

The latest country to join the European ME Alliance is Switzerland.  This and news of EMEA biomedical research conferences - click here


February 2010
 

Complaint Against UK Medical Research Council

A Press Release from Professor Malcolm Hooper Regarding the PACE Trials and a complaint against the UK Medical Research Council - click here


February 2010
 

Wheelchair Use and Attitudes

From our Autumn 2008 Journal of IiME - an interesting article on wheelchair attitudes and a comparison with a UK CNCC clinic's view of aids for people with ME - click here


January 2010
 

Interstitial cystitis and Chronic Fatigue Syndrome

ME/CFS is not the only illness which is being forced into a re-classification as a single somatoform disorder.


January 2010
 

WPI Announce Availability of Updated XMRV Testing

Further information in XMRV testing as biomedical research continues to progress to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of the immune system and the nervous system, often results in lifelong disease and disability.


January 2010
 

More evidence of inflammation in (ME)CFS

Unequivocal proof of inflammation in ME/CFS - read more


January 2010
 

Why Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) may kill you:

Disorders in the inflammatory and oxidative and nitrosative stress (IO&NS) pathways may explain cardiovascular disorders in ME/CFS


January 2010
 

A STATEMENT by INVEST in ME - regarding the BBC NEWS ARTICLE "Research finds no proof that a virus is the cause of ME"

"Much more research is underway and the results from the first XMRV replication trials such as these from ICL prove little."


January 2010
 

Documented Involvement of Viruses in ME/CFS

It is notable (and quite incomprehensible) that the PACE Trial Investigators did not include virological testing of participants in their trial that is based on their theory that patients with “CFS/ME” are merely deconditioned.
Read this very interesting, thought-provoking and disturbing article about the documented involvement of viruses in ME/CFS.

2009


December 2009
 

Can the MRC PACE Trial be justified?

The House of Commons Select Committee received seven representations about the MRC’s refusal to heed the biomedical evidence about ME/CFS. MPs found evidence of poor planning and of focusing on “politically-driven” projects that have diverted money away from top-quality proposals - read more


December 2009
  IiME Fund Raising for XMRV Research Project

IiME are fund-raising for Dr Jonathan Kerr's proposed project to research XMRV - read more here


December 2009
 

NICE Judicial Review Statement of Concern over CBT/GET

For the NICE Judicial Review many submissions were made expressing  concern about the recommendation by NICE that the primary management intervention for ME/CFS should be Cognitive Behavioural Therapy and Graded Exercise Therapy - read more


December 2009
 

UK Medical Research Council - Secret Files on ME

It is an established fact that the MRC has a secret file on ME that contains records and correspondence since at least 1988 - click here


December 2009
 

New Invest in ME Letter to CMO

Invest in ME repeat questions to CMO regarding XMRV - click here


December 2009
 

The Proof is Out There

Dr Johnathan Kerr's new research on Microbial infections in eight genomic subtypes in ME - click here


November 2009
  Updates to ME & My MP Election 2010 Campaign

The Conservative Shadow Minister for Health responds to Invest in ME's letter. And a voter's view of local ME services.

click here


November 2009
  CMO Declines to Attend IiME's 5th International ME/CFS Conference

The CMO has again declined the invitation from Invest in ME to open the International ME/CFS Conference 2010.

click here


November 2009
  Misdiagnosis/Missed Diagnoses

From our November 2009 newsletter - misdiagnosis and missed diagnoses are the end products of a system which has failed to tackle this illness. This story from Christine Wrightson is testament to the failings of a generation of policy-based evidence making from the UK government and the UK Medical Research Council.

click here


November 2009
  The Role of Viruses in ME/CFS

"There is increasing awareness that the dysregulated immune system that is a hall-mark of ME/CFS allows multiple latent viruses and microbial agents to become reactivated. Moreover, recent research has shown that even viruses which were hitherto believed not to persist after an acute infectious episode are capable of long-term viral persistence."

by Margaret Williams - click here


November 2009
  Contribute to the WPI Research Database

The Whittemore Peterson Institute for Neuro Immune Disease is compiling a research database for those with ME. If you would like to be a part of it, or to be considered for participation in current or upcoming clinical trials, you can fill out the form. Use the link below or visit the WPI site at www.wpinstitute.org.

Link to the WPI Research Questionnaire - http://www.wpinstitute.org/patient/volunteer_form.html 


November 2009
  Viral Immune Pathology Diagnostics Introduces New Test for XMRV Patients and Clinicians

Viral Immune Pathology Diagnostics Introduces New Test for XMRV Patients and Clinicians -Net proceeds from test dedicated to further WPI research-

click here


November 2009
  November 2009 Newsletter Published

click here


November 2009
  Belgium rejects CBT and GET for ME

Belgium rejects CBT/GET - click here


November 2009
  CBT and GET - Ineffective for ME

A study concludes that CBT and GET are ineffective for treating ME - click here

Invest in ME International ME/CFS Conference 2010
October 2009
  5th Invest in ME International ME/CFS Conference 2010

Invest in ME announce the provisional date for the 2010 conference - click here


October 2009
  New Letter to CMO

Invest in ME write again to the CMO on XMRV and suggest ME is Notifiable Illness - click here
See other correspondence with CMO - click here


October 2009
  Dr Martin Lerner - Press Release

Dr. Martin Lerner has issued a call to action for use of a common language in ME evaluation and treatment


October 2009
 

The Proof is Out There

The WPI XMRV research - Retrovirus Linked to ME - click here

Statement by Invest in ME
on the new XMRV research by the WPI - click here

EMEA Statement  
EMEA statement on XMRV research - click here. 


September 2009
  ME and My MP

With a year to go before an election in the UK now is an opportune time to begin detailing the responses from the different political parties - click here.


August 2009
 

Recent Fundraising Events

A new page on fundraising and awareness events


July 2009
  International ME/CFS Conference 2009 DVD

The conference DVD now being distributed.
Conference review - click here


July 2009
  H1N1 and ME

Information on H1N1 flu virus

 


July 2009
  Letter to Prime Minister

The e-petition to the Prime Minister from people with ME asking the government to attend the IiME London Conference in May; the response from the PM and our letter to the PM - click here
See the latest government response  - click here  


July 2009
 

The Proof is Out There

Dr John Chia's new research on enteroviruses and ME - click here


May 2009
  International ME/CFS Conference 2009

See conference review - click here


May 2009
  Open Letter to CMO

An Open Letter to the Chief Medical Officer in UK from Invest in ME click here


May 2009
  Journal of IiME - Volume 3 Issue 1

The conference version of the Journal is available - click here


May 2009
  IiME Response to APPG

The latest IiME response to the proposed APPG Inquiry into NHS Services Terms of Reference 
click here for APPG page


May 2009
  IiME Response to CDC 5-year Plan

Invest in ME have responded to the recently published 5-year plan for CFS (ME) from the USA Centres for Disease Control - click here


April 2009
 

MEDICALLY UNEXPLAINED SYMPTOMS AND ME MUS and ME

From our Autumn 2008 Journal of IiME - Reasons why ME does not belong to the Medically Unexplained Symptoms category - click here


February 2009
 

NICE -What's Next?

IiME comment on the recent Judicial review of NICE brought by ME patients. click here

Calendar of the Chronically-Ill - click here


February 2009
  Lost Voices - From a Hidden Illness Lost Voices - Order Here

Order Lost Voices - click here


January 2009
  IiME Biomedical Research Fund Established

From our January Newsletter - we plan to establish a biomedical research fund for ME - click here


January 2009
  ME/CFS as a Mitochondrial Disease

From our Journal of IiME Vol 2 Issue 1- mitochondrial disease and the type of secondary mitochondrial disease ME/CFS patients experience - the inability to sustain activity - click here

2008


December 2008
 

Past International ME/CFS Conferences

Click here for reviews of past IiME conferences.

See clips from 2-day 2007 Conference DVD


December 2008
 

Caring for Seriously Ill ME Patients

From our Journal of IiME Vol 2 Issue 1- a survey from Norway helping explain how to manage severely affected people with ME - now as a web page - click here 


December 2008
  Lynn Gilderdale
November 2008   European ME Alliance Launched

IiME are members of the new European ME Alliance  
click here


November 2008
  What is ME - CFS

Revisit an introduction for lawyers, clinicians and the media - click here


October 2008
  IiME & Forward ME

IiME's input to the Forward-ME meetings - click here


January 2008
 

Essential investigations for people with ME by Margaret Williams

Comments on “Identification and treatment of symptoms associated with inflammation in medically ill patients”


September 2008
  MRC Statement on ME

From our September newsletter a statement from the MRC on their policy toward ME - click here


June 2008
  IiME - "Critical of Lack of Leadership from CMO"

From our June/July newsletter - click here


May 2008
  Caring for Seriously Ill ME Patients

From our Journal of IiME Vol 2 Issue 1- a survey from Norway helping explain how to manage severely affected people with ME - click here 


May 2008
 

Sub Grouping & Treatments for ME/CFS

Conference Review
Conference Report
Journal of IiME - Conference section
IiME Press Release for biomedical research

February 2008
  Topic of the Week - Enteroviruses

A brief introduction to this topic - click here


January 2008
  IiME Letter to APPG
IiME have requested that the chair of the APPG Meeting on 22nd January put these questions to Mrs. Ann Keen MP  - click here

2007


November 2007

  facebook and IiME


Join our facebook group  - click here


September 2007
  COERCION AS CURE?

“The psychiatrist tends to have contempt for the (patient) and conceals (his) true sentiments behind a façade of caring and compassion. Each meddler believes that he is in possession of the ‘truth’ and bitterly resents those who dismiss his precious insights and interventions as worthless and harmful.


September 2007
  Letter from America

Pat Fero's update on the WPI-click here


August 2007
  ME Standards - ME Clinics

From our August newsletter - a start on establishing basic protocols and standards for ME - what we need and what we don't need from ME Clinics. click here.

August 2007
  Statistics on DLA and IB for PwME
From the August newsletter
Statistics on Disabled Living Allowance and Incapacity Benefit for UK people with ME.

 

 

 

June 2007

  Vaccinations, Antibiotics and ME

One of the less publicised, yet more and more topical, subjects nowadays coming to the fore is the role of vaccines and antibiotics in development/cause of myalgic encephalomyelitis.

Click here


May 2007
  CBT, GET And Human Rights:

From the IiME Response to the NICE Draft Guidelines

by R. Mitchell and V. Mitchell

May 2007

  Dr Byron Hyde's Nightingale ME Definition

Produced by Dr. Hyde for the Gibson Inquiry and the Invest in ME - ME/CFS  Conference 2007.

A description of what ME is and what it isn't.  Click on the image to the left open this very useful document.

Click here to read more.


May 2007
  Breakthrough in Norway

Norwegian government announces new policy to ME - here. Read of Vaccines and ME link in Norway - here.

  What is ME - What is CFS? Information for Clinicians and Lawyers

by E.P.Marshall, Margaret Williams and Malcolm Hooper

Click here to read more.

  Saying NO to CBT  

Designed to support M.E. sufferers who choose not to attend the current NHS Chronic Fatigue Syndrome/Myalgic Encephalomyelitis clinics which have been set up across the country.

Click here to read more.

  Experiences of Graded Exercise

One person's experience of GET.

  FINE Trials Experience

The FINE trials and the PACE trials seem to be the two ugly sisters of MRC policy on ME. Read one participant's experience of these costly trials (here).

2006

 

Severe ME

From the ME Conference 2006 DVD - Severe ME as shown from Norwegian TV channel NRK's Puls programme.

IiME and Meridian ITV join forces to publish the Meridian interview of ME patients. ME as it is - one of the best media pieces on ME. Click here.  

  Invest in ME Conference presentations in Journal of Clinical Pathology

The presentations from the International ME Conference in London during May 2006 have now been adapted and published in the Journal of Clinical Pathology.

Click here to read more.

 
Dr. Byron Hyde's Little Red Book

Produced by Dr. Hyde for the Invest in ME - ME Conference 2006.

A description of what ME is and what it isn't.  Click on the image to the left open this very useful document.

  Canadian Guidelines Accepted by NHS ME Doctors

Two NHS doctors treating ME patients have endorsed the Canadian Guidelines. Click here to read more.
  Advance in the Biomedical Investigation of M.E
From MERGE/Neil Abbot and Dr. Vance Spence
Many thanks to ME Research UK for allowing us to print this upbeat status of progress in biomedical research. The last paragraph of this article is telling and describes how we feel at IIME - working with the national biomedical charity for ME. Click on MERGE for a link to their excellent site.
  Canadian Diagnostic Criteria
From the Journal of Chronic Fatigue Syndrome
A description of the important Canadian definition for diagnosis of ME.

 

2005

  Professor Malcolm Hooper - Engaging with ME
From Invest in ME articles
A summary of the lecture by Professor Hooper organised by Invest in ME in 2005.
 

The GIBSON INQUIRY   UPDATE

The Gibson Inquiry published here. Read IiME response + further comments here. Click on image to left for Inquiry report.

 

IiME Response to NICE Draft Guidelines

IiME have published a response to the NICE Draft Guidelines for CFS/ME. Our response - PDF here /Nice pro-forma here.
Your own comments page here
Margaret Williams' comments here

 

Last update: 29 December 2011