2010

IiME Comment on XMRV Research - Look to the End

The European ME Alliance (EMEA) invites Health ministers and CMOs in Europe to a London meeting. Click here

IiME Comment on XMRV Research - Look to the End

The ground-breaking research performed by WPI/NCI/Cleveland Clinic has had its share of detractors - especially from some with vested interests in stopping biomedical research into ME or maintaining their status. IiME comment on XMRV research. Click here

IiME Supporter Arranges Adjournment Debate

A supporter of Invest in ME has provided all the information about ME for her MP's Adjournment debate in UK parliament. Click here

Letter to NICE

A Press Release from Professor Malcolm Hooper Regarding the PACE Trials and a complaint against the UK Medical Research Council - click here

February Newsletter Distributed

Click here for the February 2010 newsletter

February Newsletter Distributed

Click here for the February 2010 newsletter

Switzerland Joins European ME Alliance

The latest country to join the European ME Alliance is Switzerland.  This and news of EMEA biomedical research conferences - click here

Complaint Against UK Medical Research Council

A Press Release from Professor Malcolm Hooper Regarding the PACE Trials and a complaint against the UK Medical Research Council - click here

Wheelchair Use and Attitudes

From our Autumn 2008 Journal of IiME - an interesting article on wheelchair attitudes and a comparison with a UK CNCC clinic's view of aids for people with ME - click here

Interstitial cystitis and Chronic Fatigue Syndrome

ME/CFS is not the only illness which is being forced into a re-classification as a single somatoform disorder.

WPI Announce Availability of Updated XMRV Testing

Further information in XMRV testing as biomedical research continues to progress to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of the immune system and the nervous system, often results in lifelong disease and disability.

More evidence of inflammation in (ME)CFS

Unequivocal proof of inflammation in ME/CFS - read more

Why Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) may kill you:

Disorders in the inflammatory and oxidative and nitrosative stress (IO&NS) pathways may explain cardiovascular disorders in ME/CFS

A STATEMENT by INVEST in ME - regarding the BBC NEWS ARTICLE "Research finds no proof that a virus is the cause of ME"

"Much more research is underway and the results from the first XMRV replication trials such as these from ICL prove little."

Documented Involvement of Viruses in ME/CFS

It is notable (and quite incomprehensible) that the PACE Trial Investigators did not include virological testing of participants in their trial that is based on their theory that patients with “CFS/ME” are merely deconditioned.
Read this very interesting, thought-provoking and disturbing article about the documented involvement of viruses in ME/CFS.

2009

Can the MRC PACE Trial be justified?

The House of Commons Select Committee received seven representations about the MRC’s refusal to heed the biomedical evidence about ME/CFS. MPs found evidence of poor planning and of focusing on “politically-driven” projects that have diverted money away from top-quality proposals - read more

IiME are fund-raising for Dr Jonathan Kerr's proposed project to research XMRV - read more here

NICE Judicial Review Statement of Concern over CBT/GET

For the NICE Judicial Review many submissions were made expressing  concern about the recommendation by NICE that the primary management intervention for ME/CFS should be Cognitive Behavioural Therapy and Graded Exercise Therapy - read more

UK Medical Research Council - Secret Files on ME

It is an established fact that the MRC has a secret file on ME that contains records and correspondence since at least 1988 - click here

New Invest in ME Letter to CMO

Invest in ME repeat questions to CMO regarding XMRV - click here

The Proof is Out There

Dr Johnathan Kerr's new research on Microbial infections in eight genomic subtypes in ME - click here

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Belgium rejects CBT/GET - click here

A study concludes that CBT and GET are ineffective for treating ME - click here

Invest in ME announce the provisional date for the 2010 conference - click here

Invest in ME write again to the CMO on XMRV and suggest ME is Notifiable Illness - click here
See other correspondence with CMO - click here

Dr. Martin Lerner has issued a call to action for use of a common language in ME evaluation and treatment

The Proof is Out There

The WPI XMRV research - Retrovirus Linked to ME - click here

Statement by Invest in ME
on the new XMRV research by the WPI - click here

EMEA Statement  
EMEA statement on XMRV research - click here. 

With a year to go before an election in the UK now is an opportune time to begin detailing the responses from the different political parties - click here.

Recent Fundraising Events

A new page on fundraising and awareness events

The conference DVD now being distributed.
Conference review - click here

Information on H1N1 flu virus

The e-petition to the Prime Minister from people with ME asking the government to attend the IiME London Conference in May; the response from the PM and our letter to the PM - click here
See the latest government response  - click here  

The Proof is Out There

Dr John Chia's new research on enteroviruses and ME - click here

See conference review - click here

An Open Letter to the Chief Medical Officer in UK from Invest in ME click here

The conference version of the Journal is available - click here

The latest IiME response to the proposed APPG Inquiry into NHS Services Terms of Reference 
click here for APPG page

Invest in ME have responded to the recently published 5-year plan for CFS (ME) from the USA Centres for Disease Control - click here

MEDICALLY UNEXPLAINED SYMPTOMS AND ME MUS and ME

From our Autumn 2008 Journal of IiME - Reasons why ME does not belong to the Medically Unexplained Symptoms category - click here

NICE -What's Next?

IiME comment on the recent Judicial review of NICE brought by ME patients. click here

Calendar of the Chronically-Ill - click here

Order Lost Voices - click here

From our January Newsletter - we plan to establish a biomedical research fund for ME - click here

From our Journal of IiME Vol 2 Issue 1- mitochondrial disease and the type of secondary mitochondrial disease ME/CFS patients experience - the inability to sustain activity - click here

2008

Past International ME/CFS Conferences

Caring for Seriously Ill ME Patients

From our Journal of IiME Vol 2 Issue 1- a survey from Norway helping explain how to manage severely affected people with ME - now as a web page - click here 

IiME are members of the new European ME Alliance  
click here

Revisit an introduction for lawyers, clinicians and the media - click here

IiME's input to the Forward-ME meetings - click here

Comments on “Identification and treatment of symptoms associated with inflammation in medically ill patients”

From our September newsletter a statement from the MRC on their policy toward ME - click here

From our June/July newsletter - click here

From our Journal of IiME Vol 2 Issue 1- a survey from Norway helping explain how to manage severely affected people with ME - click here 

Sub Grouping & Treatments for ME/CFS

	Conference Review
	Conference Report
	Journal of IiME - Conference section
	IiME Press Release for biomedical research

A brief introduction to this topic - click here

2007

November 2007

Join our facebook group  - click here

Pat Fero's update on the WPI-click here

One of the less publicised, yet more and more topical, subjects nowadays coming to the fore is the role of vaccines and antibiotics in development/cause of myalgic encephalomyelitis.

Click here

From the IiME Response to the NICE Draft Guidelines

by R. Mitchell and V. Mitchell

May 2007

Produced by Dr. Hyde for the Gibson Inquiry and the Invest in ME - ME/CFS  Conference 2007.

A description of what ME is and what it isn't.  Click on the image to the left open this very useful document.

Click here to read more.

Norwegian government announces new policy to ME - here. Read of Vaccines and ME link in Norway - here.

by E.P.Marshall, Margaret Williams and Malcolm Hooper

Click here to read more.

Designed to support M.E. sufferers who choose not to attend the current NHS Chronic Fatigue Syndrome/Myalgic Encephalomyelitis clinics which have been set up across the country.

Click here to read more.

One person's experience of GET.

The FINE trials and the PACE trials seem to be the two ugly sisters of MRC policy on ME. Read one participant's experience of these costly trials (here).

2006

Severe ME

From the ME Conference 2006 DVD - Severe ME as shown from Norwegian TV channel NRK's Puls programme.

IiME and Meridian ITV join forces to publish the Meridian interview of ME patients. ME as it is - one of the best media pieces on ME. Click here.  

The presentations from the International ME Conference in London during May 2006 have now been adapted and published in the Journal of Clinical Pathology.

Click here to read more.

Dr. Byron Hyde's Little Red Book

Produced by Dr. Hyde for the Invest in ME - ME Conference 2006.

A description of what ME is and what it isn't.  Click on the image to the left open this very useful document.

2005

The GIBSON INQUIRY   UPDATE

The Gibson Inquiry published here. Read IiME response + further comments here. Click on image to left for Inquiry report.

IiME Response to NICE Draft Guidelines

IiME have published a response to the NICE Draft Guidelines for CFS/ME. Our response - PDF here /Nice pro-forma here.
Your own comments page here
Margaret Williams' comments here

Last update: 01 March 2010