The 7th Invest in ME

International ME/CFS Conference 2012

Building a Future for Research into ME
Clinical and Research Updates in Myalgic Encephalomyelitis

CONFERENCE REVIEW

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From Invest in ME

The 7th International ME/CFS Conference 2012 took place on 1st June 2012 in Westminster, London and was attended by presenters and delegates from 16 countries and four continents.

To the presenters we extend our grateful thanks for the biomedical research being performed. 
We would like to thank the presenters and delegates for attending the conference and contributing to another day showing the progress being achieved by biomedical research. Many travelled from afar and the conference was a success because of all of our supporters.

The conferences are meant to provide a platform for high quality biomedical research into ME and only the most blinkered of observers could have failed to see the potential to progress in treatment of this disease if more funding were directed to such research. It also continued to show the promise and real hope of treatments for this illness based on science and proper investigations. We hope that everyone left not only with an enhanced knowledge gained from the conference but also with renewed hope for development of more treatments for myalgic encephalomyelitis.

This page will be updated later with a fuller commentary.

Invest in ME will produce a DVD of the conference containing the complete presentations at the conference plus interviews and plenary session, with any profits from sales going directly to biomedical research activities organised or performed by the charity. Our web site contains details of how to order - click here.  

We hope that the many contacts which were established at the conference will continue and we hope to remain in contact with as many of you as possible.

Invest in ME organised five events during the conference days - including a the Clinical Autoimmunity Working Group which was took most of the last year to plan with the Alison Hunter Memorial Foundation of Australia (AHMF).

A private pre-conference dinner was arranged at short notice and a wonderful presentation was given by Norwegian journalist Jorgen Jelstad. His speech "Words Matter" will be available on the DVD.

Invest in ME invited a number of researchers, politicians, media persons and healthcare staff to come to the conference at our expense in order to improve understanding and distribution of correct information about ME.

Our Journal of IiME, together with the conference section, is available on our web site. If anyone has difficulties in obtaining it then please email info@investinme.org. We also have the Journal in hardcopy and this can be distributed for a small fee to cover the printing and postage.

The conference for 2012 showed the urgent need for more funding for biomedical research and the sure progress being made by those committed professionals with a clear strategy for scientific advancement. 

So what's next?

For Invest in ME there are some new ideas we shall be working on in the next months. We will be continuing our efforts to fund more biomedical research and attempting to establish our proposal for a biomedical research and examination facility in Norfolk - something which uses the NHS and existing facilities as a basis for provision of research, examinations and treatments for all patients.

We shall also be working with our colleagues in the European ME Alliance which has now grown to be eleven countries in Europe.


During the conference weekend the EMEA held its AGM and we shall be continuing to work together on initiatives which will benefit patients in Europe and beyond.

We look forward to developments in treatments being progressed and hope that our continued lobbying will make the relevant authorities aware that only good science will prevail.

We firmly believe the dedication of researchers and patient groups will soon provide real progress for people with ME and their families.

Invest in ME published its Journal of IiME [click here] at the conference and abstracts of the conference presenters' presentations are included therein. 

Please use the links above to branch to different aspects of the conference.

We value and appreciate all the comments and feedback which we received and we shall use these to attempt to improve the conference for 2012.

Please follow developments in our newsletters - which are free for everyone.

Invest in ME would like to thank the Irish ME Trust for helping us in sponsoring a speaker at the conference.

 

 

We would also like to express our thanks for all of the support we received - both before and after the conference - from our supporters.

Conference Report

A Conference Report has been prepared by Rosamund Vallings of the Associated New Zealand ME Society - click here.

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Last Updated: 09/06/2012