From Invest in ME
International ME/CFS Conference 2012 took place on 1st June 2012 in
Westminster, London and was attended by presenters and delegates from 16 countries
and four continents.
To the presenters we extend our grateful
thanks for the biomedical research being
like to thank the presenters and delegates for attending the
conference and contributing to another day
showing the progress being achieved by
biomedical research. Many travelled
from afar and the conference was a success
because of all of our supporters.
conferences are meant to provide a platform
for high quality biomedical research into ME
and only the most blinkered of observers
could have failed to see the potential to
progress in treatment of this disease if
more funding were directed to such research.
It also continued to show the promise and
real hope of treatments for this illness
based on science and proper investigations.
We hope that everyone left not only with an
enhanced knowledge gained from the
conference but also with renewed hope for
development of more treatments for myalgic
This page will be updated later with a
Invest in ME will produce a DVD of the
containing the complete presentations at the conference plus interviews
and plenary session, with any profits
from sales going directly to biomedical research activities organised or
performed by the charity. Our web site contains details
of how to order
We hope that the many contacts which
were established at the conference will continue and we hope to remain
in contact with as many of you as possible.
Invest in ME organised five events
during the conference days - including a the Clinical Autoimmunity
Working Group which was took most of the last year to plan with the
Alison Hunter Memorial Foundation of Australia (AHMF).
A private pre-conference dinner was
arranged at short notice and a wonderful presentation was given by
Norwegian journalist Jorgen Jelstad. His speech "Words Matter" will be
available on the DVD.
in ME invited a number of researchers,
politicians, media persons and
healthcare staff to come to the
conference at our expense in order to
improve understanding and distribution
of correct information about ME.
Our Journal of IiME, together with
the conference section, is available on
our web site. If anyone has difficulties
in obtaining it then please email
We also have the Journal in hardcopy and this can be distributed for a
small fee to cover the printing and postage.
The conference for 2012 showed the urgent
need for more funding for biomedical
research and the sure progress being made by
those committed professionals with a clear
strategy for scientific advancement.
For Invest in ME there are some new
ideas we shall be working on in the next months. We
will be continuing our efforts to fund more biomedical research and
attempting to establish our proposal for a biomedical research and
examination facility in Norfolk - something which uses the NHS and
existing facilities as a basis for provision of research, examinations
and treatments for all patients.
We shall also be working with our
colleagues in the European ME Alliance which has now grown to be eleven
countries in Europe.
During the conference weekend the EMEA held
its AGM and we shall be continuing to work
together on initiatives which will benefit
patients in Europe and beyond.
We look forward to developments in
treatments being progressed and hope that our continued lobbying will
make the relevant authorities aware that only good science will prevail.
We firmly believe the dedication of researchers and patient
groups will soon provide real progress for people with ME and their
Invest in ME published its Journal of IiME [click
here] at the conference
and abstracts of the conference presenters'
presentations are included therein.
use the links above to branch to different aspects of the
and appreciate all the comments and feedback which we
received and we shall use these to attempt to improve the
conference for 2012.
Please follow developments in our
newsletters - which are free for everyone.
Invest in ME would like to thank the Irish ME Trust
for helping us in sponsoring a
speaker at the
We would also
like to express our thanks for all of the support we
received - both before and after the conference - from our
A Conference Report has been prepared by Rosamund Vallings of the
Associated New Zealand ME Society -
Support ME Awareness
Invest in ME