Invest in ME - CURRENT and RECENT AWARENESS EVENTS

Please contact us to support Invest in ME in our attempts to raise awareness of ME.

Below are events which are taking place or have recently taken place.

Download our sponsorship form if you are planning fund-raising events for IiME - click here.

Return to Invest in ME - FUNDRAISING and AWARENESS

 

92 in 92

2014

The world of  ME has many hurdles - one of them being isolation for  patients. It is a too infrequent an occurrence for friends  of someone with ME to stay in contact, let alone actively do  something to help. Many ME patients can feel isolated and abandoned by their friends  and even family members. 

So we are amazed at the reaction  and spirit of a group of four friends  who are aiming to visit all 92 English Football League Stadiums  in under 92 hours in support of Invest in ME and to raise  money and awareness for the Rituximab Trial.

They are doing this to help their friend who has ME.

The event begins on April 16th 2014.  We are really grateful for  this group of four who are doing an amazing job raising  awareness before the event has even started. 

Football clubs,  hotels, TV companies have already shown interest in this positive  way of raising awareness and funds for ME.

One can follow  the news of this event here

http://92in92.blogspot.co.uk

and make donations to support the amazing event click here

The charity has had a flag especially made for the tour and this will be taken along and used for photo opportunities at all of the clubs.  

 

The BIG Sleep for ME

May 2014

 

 

Julia Cottam is once again organising The Big Sleep for ME  event in May.

Julia and the team did a fabulous job last  year and this annual event is growing nicely and looks  to be a great event to be involved in during an ME Awareness  Week from 11th to 17th May.

You can read more  about the many ways to get involved here  http://www.thebigsleepforme.com   

 

 

The MATRIX

2014

 


 

Inspired by a £1000 donation to the UK Rituximab Treatment Trial JustGiving page, the Let's do it for ME team have come up with an idea to help raise awareness and funds for this important biomedical research into understanding and finding effective treatments for ME.

The aim of the Matrix project is to help to raise as much as possible of the £350,000 required to fund this trial by inviting 100 pledges to raise or donate £1000 each.

More Details - http://www.ukrituximabtrial.org/IIMEUKRT%20Matrix.htm 

 

Let's Do It For ME

2014

 

Our friends in the LDIFME site have more details

 

 

Sample Selection of Events and Schemes
 

Walk for ME

This  is the second year that Walk for ME event is being organised  and it is another great event for almost anyone to take  part. The website has a gallery of last year's walks and  gives easy to understand information how to get involved.  Those helping Invest in ME in this event will be assured  that all funds received are used for activities for  biomedical research into ME.

Find out more from the website here - http://walkforme.co.uk/ 

Several active individual pages on Just Giving have been set up to help IiME -

Bath Marathon

Two entrants  to the Bath half-marathon are raising funds for IiME

Mark Webster is the son of ME patient Isabel  Webster. Mike's JustGiving page and story are at -Mark's  Bath Half Marathon 2014 page

Catherine Ellicott is running also - her JustGiving page is at Cath's Bath Half Marathon 2014 page. Already Catherine has achieved an incredible total.

Our grateful thanks to Mark and Catherine on behalf of all patients and carers.
 

London Marathon

Stephen Cox will be the charity's first supporter running in the London marathon on 13th April.

Stephen has set up a JustGiving page - http://www.justgiving.com/Stephen-Cox4

For a small charity such as Invest in ME it has always been difficult having an entry in the London marathon as the event seems geared for those charities who can afford to buy places. So we are incredibly grateful to Stephen for breaking the mold on this.

We would welcome any support in raising awareness of ME with these marathon events.  

Arctic  Marathon

Marathons are no mean feat to accomplish  - for anyone.

An extreme way of raising awareness of ME  and much-needed funding for biomedical research into ME has now been set in motion by Mike Shepherd. Mike is taking on the North Pole Marathon. 

As Mike writes on his web site -This is the challenge of a lifetime and it is the result of my daughter having ME since September 2008. I have seen firsthand how damaging ME can be to a person's life, their prospects and their family. http://www.shepherdfitness.co.uk

 

Books on ME

MY A-Z OF M.E. (Myalgic Encephalomyelitis) 

by Ros Lemarchand 

Do you feel that no one  understands you? 

Do you feel alone with this illness? 

Do you  find it hard to express how you feel? 

Ros Lemarchand's  book of poems about life with M.E. is a must for you.

MY  A-Z OF M.E. (Myalgic Encephalomyelitis) is available in both Kindle and paperback editions

http://www.amazon.co.uk/.../dp/1492735116/ref=sr_1_6

Ros also has a YouTube video about the book  - click here

      

Can I Tell you about ME/Chronic Fatigue Syndrome?


This  book by Jac Rayner.

IiME chairman Kathleen McCall has reviewed the book for the publisher and included the following comments -

"This book is very clear and easy to read. 

It is a great  resource that can be used by ME patients and their carers to  explain and inform others what it is like to be affected by  ME/CFS. 

Not only children but adult relatives, friends and  teachers would learn a great deal from this book."

 
Available on Amazon at this link

 

Jac's book is also to be translated into Norwegian.

 

Rafi Brown and the Candy Floss Kid

Sue Stern has raised over £1000 by taking a  MATRIX slot and donating proceeds to IiME from sales of her  children's novel last year - just a year ago.

One of Sue's sons has been severely affected  by M.E. and other related conditions for many years.

Her book has ISBN code 978-0-9574948-0-0.

Sue was interviewed by Kath, at Wythenshawe local radio, on her programme, 'Disability Matters'. 

As a result of her suggestion, I contacted the Royal National Institute for the Blind, who are now making a large-print version of the book, and when funds allow, a Braille version!

Sue's MATRIX slot is here - click here

 

 

 

Dog Therapy for ME - YODA
 

Caroline Murphy's French bulldog, Yoda, is to be presented with an Endal, a prestigious doggie medal by Dogs Today magazine at Earls Court in London (at the London pet show) on the 12th of May for his services in helping Caroline cope with M.E.

Caroline has had ME for 8 years and Yoda has helped her manage her condition more easily.



Caroline wants to promote pets as a good therapy and the media will be featuring this.

We are happy to help Caroline in raising awareness of ME in this way.

 

 

 

 

Lindsey's Weightloss Campaign

April 2012

 

I'm aiming to lose weight for IiME because too many people are suffering with no hope. Hi everyone. I have decided to sponsor my weightloss campaign in order to raise money for Invest in M.E. Their goal is to establish a UK centre for bio medical M.E research and treatment, based at the university of East Anglia in Norwich UK.



JustGiving page - click here 

 

 

Peter Ross running the Brighton Marathon 2012

April 2012

 

This is a charity that can make a difference to a lot of people who don't make headlines, but can struggle in their day-to-day life. You can make a difference to research into treatments for an illness that affects 150,000 people in the UK alone. I will be running the Brighton Marathon in April 2012 with many friends and my brother, Mark, which will increase the competition and challenge. I won't be beaten by my older brother! Anything you can donate would be very special to me and I thank you in advance.

20mile run from South-North London today

 

 

Carole Fundraising at ASDA

March 2012

 

Carole Carrick at Asda Dunbar Supermarket 30th March 2012 - collecting a total of £196.19 for Invest in ME's Biomedical Research Fund - and also spreading much needed awareness of ME.


 

 

Mini Brighton Marathon 2012

March 2012

 

I am 10 years old, since I was 5 my mum has suffered with M.E and other illnesses. I want to raise money to help gain research in the UK which may help get treatment and maybe even one day, a cure. It breaks my heart to see my mum suffering and in pain. We don't get to go out often like my friends do, but my mum does her best. I know it upsets her as I have seen her wiping away tears. When we do manage a day out, mum has to use a wheelchair, even then it tires her out for days, she catches viruses very easily too. All I want is my well mum back. It upsets me to know children suffer this cruel illness. I know how lucky I am that I don't have it, so I will do what I can do to help not just my mum BUT children and adults suffering too.

THANK YOU FOR READING MY STORY- PLEASE DONATE WHAT YOU CAN, MANY OTHER CHILDREN ARE IN THE SAME POSITION AS ME... I AM RUNNING FOR YOU ALL!!!!! I AM AMAZED AT THE DONATIONS I AM RECEIVING, THANKS SO VERY MUCH :) XXXXXX PLEASE, IF YOU CANNOT DONATE, PLEASE SHARE MY STORY, REMEMBER WE NEED THE UK BIOMEDICAL RESEARCH CENTRE...... 



 

 

An Event to Raise Awareness of ME Through the Various 'Arts'

March 2012

 

Thank You for taking the time to visit my JustGiving page.

My 'pledge' is to raise more accurate awareness of ME/CFS & Fibromyalgia through my upcoming website & blog and to raise money for the InvestinME charity- especially during International Awareness Week starting May 11th where a friend & I (Katherine) I will be holding an Awareness through the Arts event in Canterbury, Kent.



 

 

Nadine is giving up Facebook for Lent

March 2012

 

Nadine is giving up Facebook for Lent and wants to raise as much money as possible for a cause that is close to her heart and has kindly agreed to let me write this page for her. It's difficult to know what to write as I've not spoken to her for two years, well I didn't like to interrupt. Giving up Facebook is quite a sacrifice as it can be a life line for people who have an isolating illness like Nadine and she deserves your support.



 

 

 

 

Dave and Tanya's Weight Loss Challenge

March 2012

 

Thank you for taking the time to visit our JustGiving fundraising page.

Our daughter Tara fell ill with M.E. in November 2010, when she was just 10 years old. Since then she has been unable to attend mainstream or medical school, resulting in our decision to de-register her and begin home-schooling ourselves. Our lives have dramatically changed since this illness, Tara never complains and always sees the bright side of any situation, no matter how hurt she feels inside.

She suffers from chronic pain, headaches, dizziness (blacking out on occasions), regular sore throats and swollen glands, nausea, noise sensitivity and canít manage large social gatherings due to the sensory overload and exhaustion it causes. These are just a few of her symptoms Ė there are many more! Tara needs to take various medications to help her control her symptoms and misses life as it used to be. For those of you who know Tara, you will remember she used to be such an active child. Always on the go, singing all the time and dancing her way around the house. She attended tap and modern dance lessons, musical theatre and also dance groups at school. Nowadays we use a wheelchair for when we go out as a family, as Tara canít walk too far due to exhaustion and the pain it causes in her limbs and back. She struggles to sing and if she does itís at a whisper as the strain of it hurts her throat. Although at the moment her activities and social life are limited and have to be managed very carefully she is able to maintain friendships.



 

 

 

Annabel's Screen-Free Weekend

March 2012

 

Thanks for taking the time to visit my JustGiving page.

I would like to raise some coppers for a project close to my heart, the Let's do it for M.E campaign for Invest in M.E. As most people know, I have had M.E now for 13 years. Approximately 250,00 people in the UK are believed to suffer from ME: a serious neuro-immune disease for which there is currently no cure and few effective treatments. It is a severe, complex, acquired illness with numerous symptoms related mainly to the dysfunction of the brain, gastro-intestinal, immune, endocrine and cardiac systems. One in four sufferers are severely affected, bedridden or housebound, as a result of their condition whilst 10% of sufferers here in the UK are children.On Sunday 9th October 2011, Frances Hiller will be running her first half marathon. Fran is raising as much money as possible for Invest in ME.



 

 

Rosemary's Tour of the Dengie

February 2012

 

My daughter Emily has been ill with ME for about three years now and it's impossible to get any medical help for her due to the lack of any biomedical research. Invest in ME "IiME" charity is trying to raise £75,000 to establish a research and treatment centre in Norwich. Please donate as much or as little as you can.



 

 

 

Paul and Susie's Paris Marathon Page 2012

March 2012

 

Thanks for taking the time to visit our Marchy Marathon page. We want to raise money for Invest in ME. Here's why.

Approximately 250,000 people in the UK are believed to suffer from ME: a serious neuro-immune disease for which there is currently no cure and few effective treatments. One in four sufferers are severely affected or housebound as a result of their condition, whilst 10% of all the country's sufferers are children. Some of those affected are unable to move, speak or swallow, but the most typical symptom of ME is post-exertional neuro-immune exhaustion. In these instances, a sufferer can become severely ill after carrying out even the most basic of mental or physical tasks - the effects of which can be felt for days or even weeks. ME, by its nature, is a fluctuating condition. The severity of these and other symptoms can wax and wane during any given day, week or month; and, over the years, sufferers may find themselves experiencing an unexpected number of remissions and relapses without any warning. Previous studies have suggested that 80% of all sufferers from ME will never recover, they are more susceptible to other diseases such as cancer, and their life expectancy is twenty-four years less than the national average. And whilst there is a significant amount of scientific evidence and research into the disease and its effects, there is still no cohesive strategy for using this research to investigate effective and long-term treatments to help its sufferers. There are charities out there who are willing to help, raising both awareness of the condition, and funding for future research. Invest in ME is one such charity within the UK, and every penny will go towards developing its most recent project: Let's Do It For ME!



 

 

Dave's Paris Marathon 2012

February 2012

 

Thanks for taking the time to visit my JustGiving page.

I'll be helping to raise money for 'Let's Do It For ME', an awareness and fundraising campaign run by ME sufferers in close connection with the Charity Invest in ME. ME is classified as a multi-systemic disease, and affects an estimated 250,000 people in the UK 25% of those are severely affected and 10% are children. Some of those affected are unable to move, speak or swallow, but the most typical symptom of ME is post-exertional neuro-immune exhaustion. In these instances, a sufferer can become severely ill after carrying out even the most basic of mental or physical tasks - the effects of which can be felt for days or even weeks. ME, by its nature, is a fluctuating condition. The severity of these and other symptoms can wax and wane during any given day, week or month; and, over the years, sufferers may find themselves experiencing an unexpected number of remissions and relapses without any warning. Patients with severe ME have been largely excluded from research and also from treatment, as services have not been developed to meet their special needs and lack of research means that doctors have no evidence-based treatments to offer them. 



 

 

 

Running for my sister ... praying for a cure

February 2012

hello all, my name is Laura ...

I am 31 and mum to my amzing daughter who is nearly 12, she makes my life complete everyday. But this page and this journey im on is for my sister kerryn who is 33 and for the last 10 years has had the awful illness M.E!! for those of you that do not know the illness or don't understand it, or have heard rumours that it is all in the mind.. please take a moment to share my story from a loved ones side. My sister first returned home from doing an Art degree in 1999, this was not by choice but due to the start of this illness that at this point we knew nothing about, all I knew as her sister was my incredible.. VERY TALENTED, full of life sister was now spending everyday in bed, wanting quiet and suffering terrible panic attacks. She suffered constant pains and getting through her day was minute by minute, not knowing what the day would hold. After months of suffering and more doctors appointments that i care to remember, she finally saw a specialist and was diagnosed with M.E, at this point all we could do was research the illness and deal with the fate that she had been blown... I just wish everyone that questions this illness would read about it or ask us and not make the comments that to this day hurt and haunt our family.



 

 

 

Scott's Scottish Marathon in May

February 2012

 

Thanks for taking the time to visit my JustGiving page. Approximately 250,000 people in the UK are believed to suffer from ME: a serious neuro-immune disease for which there is currently no cure and few effective treatments. One in four sufferers are severely affected or housebound as a result of their condition, whilst ten percent of all the country's sufferers are children. Some of those affected are unable to move, speak or swallow, but the most typical symptom of ME is post-exertional neuro-immune exhaustion. In these instances, a sufferer can become severely ill after carrying out even the most basic of mental or physical tasks - the effects of which can be felt for days or even weeks. ME, by its nature, is a fluctuating condition. The severity of these and other symptoms can wax and wane during any given day, week or month; and, over the years, sufferers may find themselves experiencing an unexpected number of remissions and relapses without any warning.



 

 

Carole Fundraising at ASDA

December 2011

 

Carole and Clive Carrick were fundraising for IiME biomedical research at ASDA in Berwick Upon Tweed in December 2011.


 

 

 

Half-Marathon

October 2011

 

On Sunday 9th October 2011, Frances Hiller will be running her first half marathon. Fran is raising as much money as possible for Invest in ME.

Fran's husband has suffered from ME/CFS for over a decade. It's an illness that is still poorly understood, and there is a great deal of misinformation and prejudice surrounding it. Invest in ME campaigns for and funds biomedical research, which is desperately needed. The charity is run entirely by volunteers, so all money raised goes directly to biomedical research.



Everyclick page click here 

 

 

Let's Do It for ME

Do you want to help us make this big idea a reality?

 

Tony Lobo's Marathon Run for Invest in ME (Myalgic Encephalomyelitis)

Do you want to help us make this big idea a reality?

 
 

Let's Do It for ME-Sponsored Silence

Do you want to help us make this big idea a reality?

 

Three Peaks Challenge

August 2011

 
3 Peaks, 3 Countries in 24 hours! Please support Richard Wood in trying to raise as much money as possible for Invest in ME. Myalgic Encephalomyelitis (M.E.), is an under-researched illness that affects so many people's lives in different ways



Everyclick click here 

Further information - http://www.thethreepeakschallenge.co.uk

Do you want to help us make this big idea a reality?

The Cotswold Way, Cotswolds

August 2011

 
Wanted: Hikers to accompany Will David on a sponsored hike. This will be carried out in August bank holiday weekend from Bath to the Northern Point of the Cotswolds - the Cotswold Way. This is approximately 100 miles. Will needs other IiME supporters to help in raising funds for Invest in ME's Biomedical Research Fund which supports biomedical research into ME.

Please contact Invest in ME if interested.

A little to the north and east of the Severn Estuary, within comfortable reach of London, the Cotswolds is an area of gentle hills and valleys. With its picturesque villages in their yellow local stone, it is commonly thought to be the essentially English region. The Cotswold Way was designated a local distance footpath in 1970 and a National Trail in 1998. It runs along the western escarpment, starting close to Shakespeare's Stratford and finishing in Bath.

More info click here 

 

Last Updated: 22/03/2014