The first advisory board meeting was
held on Thursday 28 August 2014 in London.
The meeting discussed what we know about ME so far, the progress of the UCL B cell study and UEA gut microbiota research and the aims of these projects in, for example, identifying sub groups of patients and how the research Invest in ME is funding at the moment can be tied together to complement each other.
There was consensus that the most difficult part for researchers is to find correctly diagnosed patients and they rely on clinicians to do the selection process. It was discussed how there are probably very many low lying patients who have this disease but are outside of the healthcare system - something IiME has pointed out many times in the past - and it would be useful to identify those patients and enable them to be part of research efforts.
Together we are working on establishing the correct
and unbiased science to be involved in ME research.
A number of key areas and possible
projects have already been identified.
We shall be working together with our
board over the coming months to initiate these projects.
Our supporters have made wonderful
efforts to enable a solid base of research to be made possible and
we welcome support for our plans. We will publicise more on these
projects as soon as we are able to do so.
We believe our approach to initiating
biomedical research into ME is paying off and feel very strongly
that the key elements of a correct and productive strategy of
research into ME are or have been created.