The M.E. Conference 2006
An Update on Clinical Diagnosis, Research Trends and Educational Support

on 12th May 2006 in London

Why a conference? Why London? Why 12th May? Why ME Awareness Month? Details of Conference Conference Review

The conference was given the maximum 6 points CPD (Continuous Professional Development) accreditation by the Royal Colleges.

The conference provided a chance to hear the latest news on ME from the most prominent speakers within the ME community - on ME Awareness Day, in ME Awareness Month 2006.

Invest in ME hoped that this conference would highlight the need for publicly funded biomedical research which would lead to treatment and a cure for this devastating illness - an illness which is about 5 times more common in the UK than HIV/AIDS.

Below there are links to details of the presenters.


Details of the ME Conference 2006

Here are details of the ME Conference. If you have problems contact us at meconference2006.


The venue was One Birdcage Walk, Westminster, London - click here for a map reference or here for a 360 Virtual Tour.


Professor Malcolm Hooper Emeritus Professor of Medicinal Chemistry, University of Sunderland See details
Dr. Byron Hyde Nightingale Research Foundation See details
Dr.Bruce Carruthers Principal Author of the Canadian Guidelines See details
Jane Colby Former Head Teacher; Executive Director of Tymes Trust See details
Dr. Jonathan Kerr Sir Joseph Hotung Senior Lecturer in Inflammation, St George's University of London See details
Professor Basant Puri Consultant at Hammersmith Hospital See details
Dr. Ian Gibson MP MP for Norwich North and chair of the Proposed Inquiry into ME See details

Conference Programme





Welcome/Opening Address

Invest in ME

Key Note: The Independent Parliamentary Inquiry

Update on progress made and outcomes.

Dr. Ian Gibson MP

Definitions and Aetiology _

The importance of diagnostic criteria.

Dr. Bruce Carruthers


Summary of “Key Findings” of past bio‑medical research.

Professor Malcolm Hooper

Children and Education:

Incidence, clusters and specific problems of youngsters with M.E.

Jane Colby


The epidemiology, definitions and techniques of investigation of the ME and CFS patient and the resulting pathological findings

Dr. Byron Hyde


Viral and Human Gene Expression, development of diagnostic test, news of clinical trials

Dr. Jonathan Kerr

Lipid Neuroscience - an overall picture of (and links to) other treatments/research

Professor Basant Puri

The Way Forward followed by Open Forum


Proposed topics for educational support and future research with reasons why.

Dr. Bruce Carruthers
Professor Malcolm Hooper
Dr. Byron Hyde
Dr. Jonathan Kerr
Jane Colby
Prof. Basant Puri

Ad-hoc discussions in Marble Hall

Why a Conference?

Invest in ME is about education, publicising and lobbying regarding the treatment of ME sufferers in the UK and regarding the need for public funding of biomedical research into ME.

In recent years there are many of us who feel that ME Awareness Week (as it has become) has passed with too little public attention gained, little co-ordination of events and limited success in rallying people behind our cause, all of which has produced little or no long term benefit for the ME sufferers.

Therefore, we considered how we could complement all the on-going good efforts and attract a much larger interest from professionals in the medical, healthcare, academic and media worlds that could also raise the profile politically.  Since IiME had forged links with academia and some politicians, we thought that a public event to expose current activities to a wider audience would be of benefit to all.

We believe it is important to provide a possibility for people within government, health departments, social services and schools to be able to be informed of the true nature of ME. By attracting some of the most powerful speakers possible, at one conference, we believed we could gain much publicity and awareness of ME as possible.

Why London?

We chose London to attract major presenters, to allow the possibility for known professionals and researchers to attend and focus attention on raising awareness in the heart of power in the UK - Westminster.

Why ME Awareness Month?

We should focus on more than one day (and on more than one week) in the year for an illness which is more prevalent than people would imagine. Invest in ME are calling on the ME community to create a month of campaigning for ME, with one event following another, up and down the country?
Look at the recent successful McMillan campaign for Cancer. That lasted a whole month and had a campaign (Think Pink) which attracted much publicity and, more importantly, huge funds.

Invest in ME wished to see and support many events during the month of May to extend the visibility of this “Hidden National Scandal” to increase public awareness and fund-raising opportunities

Why 12th May?

12th May is the anniversary of Florence Nightingale's birthday (who is thought to have suffered M.E. on her return from the Crimea) and is the focal point of ME Awareness Month 2006.