Invest in ME have previously warned
in our newsletters of the obfuscation of the establishment
organisations and their supporters. Professor Malcolm Hooper has
provided ample evidence of this (Magical Medicine: How to Make a
Disease Disappear -
click here).
Invest in ME
was set up out of frustration - frustration by the lack of progress in getting proper
properly funded biological research into ME, frustration by the apathy toward
change from existing organisations and even some charities which, in turn, condemned
people with ME and their families to more years of suffering.
Progress in getting this
illness treated properly has been slow - far too slow.
Therefore, it is of concern that we
publish Dr David Bell's warning (click here) about the
dangers from the establishment in employing known tactics to hamper the current work
on XMRV by the WPI.
Our
conferences were started to provide a platform for
biomedical research so that healthcare staff, media,
politicians and patients/patient groups could become
aware of the extensive mass of biomedical research,
could hear of the latest news of treatments and
research, and could be made aware of the misinformation
about ME being promoted by the same institutions,
charities and individuals who were content with a
status-quo of stalemate.
Having invited the Whittemore-Peterson institute to our
2007 conference, and then deciding to reserve a
permanent place in future conferences for
the WPI, it
has been clear to us that the WPI had the vision to pursue a co-ordinated
strategy of biomedical research into ME. The ambitious plans
of the WPI
for researching ME/CFS, and other neuro-immune diseases,
is the beacon for many in the world.
The XMRV research published last year has energised ME
research and provided more hope for people with ME and
their families than all of the so-called strategies
which the USA CDC and UK Medical Research Council have
produced in the last twenty years.
Following Dr. Bell's warning Invest in ME will therefore
use the proceeds from our wristbands for ME Awareness Month
campaign (click here) to support the WPI. We know this may not
amount to much and is largely symbolic but we feel it is important to
show our support and this will follow the ethos behind Dr Bell's
comments. We hope to be able to do more to help the WPI in the
future.
We invite everyone in UK and Europe
and beyond to support the comments of Dr. Bell and make a gesture by
buying our
Support Biomedical Research wristbands. By doing so you will be supporting IiME,
supporting the WPI and promoting ME awareness.
Please email us -
contact us here.
www.investinme.org
Last Updated: 5/5/2010
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