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For a long
time Invest in ME have been critical of the workings, decisions
and policies of the Medical Research Council.
Given that
biomedical research, including gene research (which has shown
that in people with ME/CFS, there are more gene abnormalities
present than are found in cancer sufferers) has demonstrated
that the psychiatrists who hold such sway at the MRC are
comprehensively wrong about ME/CFS, nowhere could such criticism
be more appropriate than in relation to the PACE Trial.
Professor Malcolm Hooper has
made a formal complaint to the Minister of State responsible for
the Medical Research Council.
A 442 page report, under the
title Magical Medicine: How to Make a Disease Disappear, has also
been produced detailing the failings of the Medical Research
Council and specifically the PACE trials.
The report
addresses the background to the MRC “PACE” Trial on “CFS/ME”,
the biomedical evidence that disproves the assumptions of the
MRC trial Principal Investigators, the many extremely disturbing
issues surrounding the PACE Trial, and illustrations from the
Manuals used in the trial. The document
contains the background to consideration of and quotations from the Manuals for the Medical Research Council’s PACE Trial of behavioural interventions for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis together with evidence that such interventions are unlikely to be effective and may even be contra-indicated.
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