ALISON HUNTER MEMORIAL FOUNDATION

 

The Alison Hunter Memorial Foundation of Australia have offered to help sponsor the Invest in ME International Conference 2009. This wonderful offer, made by Alison's mother, Chris Hunter, and the board of the Alison Hunter Memorial Foundation will enable Invest in ME to produce the DVD of the conference which enables more education to reach more people around the world.

The Alison Hunter Memorial Foundation (AHMF) is an enduring memorial to Alison Hunter and all those whose lives have been devastated by ME/CFS.

Alison died in 1996, aged 19, from complications arising from ME/CFS which included seizures, paralysis, gastrointestinal paresis and overwhelming infection resembling Behcets Disease. Such complications are rare and only present in a severe subgroup. Alison courageously fought ME/CFS for ten years and was an unstinting advocate for young people.

Alison was the founding president of ME Young Adults (MEYA), established in 1992 at Royal North Shore Hospital, Sydney.

"There is a common misconception that support groups are merely 'pity parties', and promote an unhealthy dwelling on one's disease. This is definitely not borne out in our experience with M.E.Y.A. One of the M.E.Y.A.'s most important functions is to provide social interaction in a non-threatening environment...to support, encourage, and above all, empower adolescents."
- Alison Hunter - Excerpt of address International Meeting on Chronic Fatigue Syndrome 1820 May 1994 Dublin, Ireland

The AHMF was established in 1998 through the initiative of the Public Interest Advocacy Centre, and The Public Interest Law Clearing House as a project of the law firm Minter Ellison.

The Alison Hunter Memorial Foundation is a non profit institution working independently in a spirit of support and cooperation with all researchers, institutions and ME/CFS societies to advance scientific knowledge and medical care for people with Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS). The Foundation aims to provide information, education and advocacy for consumers and medical.

For more information go to www.ahmf.org

Contact details:

Alison Hunter Memorial Foundation
PO Box 6132
NORTH SYDNEY NSW 2059
Australia

More information:

IiME/AHMF Cooperation: