Welcome to INVEST in ME

Who we are
We are an independent UK charity campaigning for bio-medical research into Myalgic Encephalomyelitis (M.E.), as defined by WHO-ICD-10-G93.3.
We have links nationwide and also internationally. Invest in ME are one of the founding members of 
The European ME Alliance.

Our aim is to bring together like-minded individuals and groups to campaign for research and funding to establish an understanding of the Aetiology (causes), Pathogenesis (harmful effects) and Epidemiology (the pattern of distribution of a disease through a population) of M.E. This should lead to the development of a universal "thumb-print" test for diagnosis of M.E. and, subsequently, medical treatments to cure or alleviate the effects of the illness.

Invest in ME want to establish a national strategy of biomedical research into M.E. and establish a UK and European Centre of Excellence for biomedical research into M.E.

Please help make M.E. an illness which is properly understood and where adequate funding is provided for biomedical research into ME allowing treatments and cures  to be found.



The ME Information Centre
We wish to make this an easy destination to visit to find out anything about M.E. that you would like to know. Whether you are a sufferer, a parent/carer, a person involved in the media (see our Press pages) or somebody who would like to know more then visit our Information Centre for an insight into ME.



The Tragedy of ME
The effects of ME are apparent to any M.E. sufferer and their carers/parents.  Here is a sample of stories from M.E. sufferers which illustrates the sadness, and the reality, behind this illness. It also shows the positive approach of M.E. sufferers and serves to dispel any notions of depression as a causative feature of M.E., something which often accompanies many of the less-informed handouts given to, or by, the media and some organisations.
The Story Gallery - shows some of the tragic but hopeful stories concerning M.E.




Can you Help?
If you suffer from M.E. then we invite you to support us - we are sufferers and carers of ME sufferers ourselves - contact us now for more information on how we can work together to make a difference.
If you are a parent of a child with M.E. then we know what you are going through - help us to help you to do more than just cope.
The contacts page allows us to know about you.
Also - sign up for our newsletter - click here for more details.
Also ways to help Invest in ME - click here.




Ideas?
There is no monopoly on a good idea to raise funds for biomedical research - go to our Ideas Factory page and contact us with your idea.
If you want to browse more use our site map to show which sections we have and so limit the effort required to find some information.



ME-baY
Use our ME-bay to auction and fund biomedical research into ME. See our IiME store area.

NEWS FROM IiME
CURRENT IiME EVENTS
IiME Conference 2012
Let's Do It for ME
IiME Proposal for UK ME centre


CURRENT NEWS ITEMS Recently added news items -
IiME input to the current APPG meeting
Defending the Indefensible - II
Defending the Indefensible
Statistics and ME - Information about the article “Statistics and ME” by Professor Malcolm Hooper
Using Cardiopulmonary Exercise Testing to Evaluate Fatigue and Post-Exertional Malaise in ME/CFS
“Grey” Information about ME/CFS
Bursting Our Bubble - Norwegian Style
Ground-breaking biomedical research on our conference DVD
IiME complaint to Press Complaints Commission regarding misinformation
UK film Premiere - Voices from the Shadows
IiME Charity of the Month of John Lewis - Please Vote
Gurli Bagnall
Letter to RCGP/InnovAiT
It's a Funny Old World
Science Vs Psychiatry
Conference 2011 DVD status
Invest in ME input to the APPG for ME meeting 22/6
DWP DLA Review - IiME input
European ME Alliance  submission to APA DSM-V Draft Proposals
Invest in ME Conference 2011 - Conference Report
Journal of IiME available
IiME arrange for MPs to meet with presenters at IIMEC6
MAY Awareness advert London Business Matters
“Grey” Information about ME/CFS
The Media and ME
Ignorance is not an option. Letter to Editor of the Lancet
Letter to RCPCH regarding NICE statement
DWP & PACE Trials

 

- IiME Responds to Lancet PACE Trials Publication
and
- Initial Statement on the PACE Trials
Can the MRC PACE Trial Be Justified?
Magical Medicine: How to Make a Disease Disappear
IiME Statement on Research Funding
IiME Proposal for UK ME centre
Invest in ME statement on XMRV Research
Stories and News Items from 2010 - click on CURRENT NEWS ITEMS above
IiME Submission to NICE Review of Guidelines for ME
Complaint to Ethics Committee on children study
Organ Donations from pwME not included blood ban
Mission Accomplished
The ME Dilemna
Knowledge or Belief
Testimony to CFS Advisory Committee
Memo to NICE
Critique on the model for ME/CFS put forward by Harvey and Wessely in BMC article
Support Biomedical Research: ME Awareness wristbands to fund IiME research
New Zealand to follow Canada Blood Service in banning ME patients from giving blood
European ME Alliance (EMEA) calls for Europe-wide Ban on Blood Donation
Invest in ME Submission to APA DSM-V Draft Proposals
Media - Concern over potential for widespread infection after preliminary evidence XMRV transmitted similarly to HIV
Letter from America
Misdiagnosis and missed diagnoses - an update
The IiME response to BMJ editorial
Wheelchair Use and Attitudes -from Journal of IiME V2I2
Documented involvement of Viruses in ME/CFS
NICE - Statements of Concern about CBT/GET
MRC and Secret Files on ME/CFS

Read news archive >>

ME INFORMATION CENTRE Information & articles on ME. Latest -
Why ME/CFS may kill you:  Cardiovascular disorders in ME/CFS
Interstitial cystitis and Chronic Fatigue Syndrome
More evidence of inflammation in ME/CFS
Why ME/CFS may kill you:  Cardiovascular disorders in ME/CFS
The role of viruses in ME
CBT/GET Ineffective for ME

Read more >>

ME RESEARCH Details of biomedical research into ME. Latest -
Bond University receive  $800,000 for research to identify cause and treatment of ME
Double-blind, placebo-controlled phase II study of Rituximab
ME is (bio)logically explainable
Using Cardiopulmonary Exercise Testing to Evaluate Fatigue and Post-Exertional Malaise in ME/CFS
International Science Symposium ME/CFS
Chronic Fatigue Syndrome after Q fever
Dr Lerner - management of glandular fever and sequelae
Critique on the model for ME/CFS put forward by Harvey and Wessely in BMC article
Dr Julia Newton - Orthostatic symptoms predict functional capacity in chronic fatigue syndrome: implications for management
Dr Jonathan Kerr - Microbial infections in eight genomic subtypes of ME
Dr John Chia - Acute enterovirus infection and viral persistence

Read more >>

CAMPAIGNING for ME Details of past ME awareness campaigns.
IiME organise IIMEC6 researchers visit to Parliament
ME & My MP Election 2010 - a voter's view of local ME services
Letters to the DoH
Letters to the CMO
IiME supporter arranges Adjournment Debate in parliament
Letter to the PM from IiME
Response to CDC 5-year plan
Calendar of Chronically Ill
Nice - What's Next?

Read more >>

FUNDRAISING for IiME A page on fundraising activities and awareness events to support Invest in ME.
Let's Do It for ME
3 Peaks Challenge for IiME
Sponsored Hike - August 2011
Joshua Runs for IiME
Oakamoor fundraising for IiME
Malvern College Students

Read more >>

SEVERE ME
From the IiME Conference 2006 DVD - Severe ME as shown from Norwegian TV channel NRK's Puls programme.

IiME and Meridian ITV join forces to publish the Meridian interview of ME patients. ME as it is - one of the best media pieces on ME. Click here.


The JOURNAL of IiME A blend of research, science, facts, politics and real-life experiences relating to ME/CFS.

Read more >>

LOST VOICES Lost Voices - From a Hideen Illness
Read more >>

CANADIAN GUIDELINES £1.64p each (+p&p)
Invest in ME have been given the rights to distribute the Canadian Consensus Guidelines in the UK - click on image
.
Contact IiME
to purchase.