Welcome to the INVEST in ME community

Who we are
We are an independent UK charity campaigning for bio-medical research into Myalgic Encephalomyelitis (M.E.), as defined by WHO-ICD-10-G93.3.
We have links nationwide and also internationally. Invest in ME are founding members of  The European ME Alliance.

Our aim is to bring together like-minded individuals and groups to campaign for research and funding to establish an understanding of the Aetiology (causes), Pathogenesis (harmful effects) and Epidemiology (the pattern of distribution of a disease through a population) of M.E. This should lead to the development of a universal for diagnosis of M.E. and, subsequently, medical treatments to cure or alleviate the effects of the illness.

Invest in ME want to establish a national strategy of biomedical research into M.E.

Please join us and help make M.E. an illness which is properly understood and where adequate funding is provided for biomedical research into ME allowing a treatment and cure to be found.



The ME Information Centre
We wish to make this an easy destination to visit to find out anything about M.E. that you would like to know. Whether you are a sufferer, a parent/carer, a person involved in the media (see our Press pages) or somebody who would like to know more then visit our Information Centre for an insight into ME.



The Tragedy of ME
The effects of ME are apparent to any M.E. sufferer and their carers/parents.  Here is a sample of stories from M.E. sufferers which illustrates the sadness, and the reality, behind this illness. It also shows the positive approach of M.E. sufferers and serves to dispel any notions of depression as a causative feature of M.E., something which often accompanies many of the less-informed handouts given to, or by, the media and some organisations.
The Story Gallery - shows some of the tragic but hopeful stories concerning M.E.



Can you Help?
The answer is almost undoubtedly YES!
If you suffer from M.E. then join us - we are sufferers and carers of ME sufferers ourselves - contact us now for more information on how we can work together to make a difference.
If you are a parent of a child with M.E. then we know what you are going through - help us to help you to do more than just cope.
The contacts page allows us to know about you.
Also - sign up for our newsletter - click here for more details.



Ideas?
 There is no monopoly on a good idea to raise funds for biomedical research - go to our Ideas Factory page and contact us with your idea.
If you want to browse more use our site map to show which sections we have and so limit the effort required to find some information.


ME-baY
Use our ME-bay to auction and fund biomedical research into ME. See our IiME store area.

 

  NEWS FROM IiME

Journal of IiME
The conference version of the Journal is now available - click here


International ME/CFS Conference 2009
Conference review coming shortly. order the DVD here - click here


Open Letter to CMO
An Open Letter to the Chief Medical Officer in UK from Invest in ME       click here


IiME Response to APPG
The latest IiME response to the proposed APPG Inquiry into NHS Services Terms of Reference 
click here for APPG page

 

IiME Response to CDC 5-year Plan
Invest in ME have responded to the recently published 5-year plan for CFS (ME) from the USA Centres for Disease Control
- click here


International ME/CFS Conference News
Alison Hunter Memorial Foundation Sponsors IiME Conference


Conference News - click here
Conference Home Page - click here


 '
Lost Voices - Order Here


MUS and ME
From our Autumn 2008 Journal of IiME - Reasons why ME does not belong to the Medically Unexplained Symptoms category - click here


Severe ME
Our 2009 conference concentrates on severe ME. From the ME Conference 2006 DVD - Severe ME as shown from Norwegian TV channel NRK's Puls programme.

IiME and Meridian ITV join forces to publish the Meridian interview of ME patients. ME as it is - one of the best media pieces on ME. Click here.


IiME & Forward ME
IiME's input to the Forward-ME meetings - click here

 

Caring for Seriously Ill ME Patients
From our Journal of IiME Vol 2 Issue 1- a survey from Norway helping explain how to manage severely affected people with ME - click here 


NICE -What's Next?
IiME comment on the recent Judicial review of NICE brought by ME patients.

click here

Calendar of the Chronically-Ill -
click here


ME/CFS as a Mitochondrial Disease
From our Journal of IiME Vol 2 Issue 1- mitochondrial disease and the type of secondary mitochondrial disease ME/CFS patients experience - the inability to sustain activity.


European ME Alliance Launched
IiME are members of the new European ME Alliance  
click here


What is ME - CFS
Revisit an introduction for lawyers, clinicians and the media - click on title.



Topic of the Week - Enteroviruses
A brief introduction to this topic - click on title.



Canadian Guidelines
80p each (+p&p)Invest in ME have been given the rights to distribute the Canadian Consensus Guidelines in the UK
- click here. Contact IiME to purchase.


facebook and IiME
Join our facebook group - click here


SOPHIA MIRZA
Read Sophia's story, as told by her mother, Criona.
Share thoughts of others - click here.
See the ITV programme on Sophia-click here.
The Inquest summary is here with translations into Danish, German & Spanish.

and what of Sophia? - from our May 2008 newsletter


ME Standards - ME Clinics
From our August 2007 newsletter - a start on establishing basic protocols and standards for ME - what we need and what we don't need from ME Clinics. click here.
 


DLA and ICB Statistics
From our August newsletter - statistics on DLA and IB for pwme - click here.


The Info Centre Library
Includes two booklets from Dr. Byron Hyde.

The Nightingale Definition of ME - produced for the Gibson inquiry and the IiME ME/CFS Conference 2007 - click here.
And Dr. Byron Hyde's little red booklet of What is ME - produced for the Invest in ME Conference 2006 Click here


CBT, GET and FINE Trials
Saying
NO to CBT

Forced to accept CBT for a neurological illness? Consider these points.


Experiences of Graded Exercise
One person's experience of GET.

FINE Trials Experience
The FINE trials and the PACE trials seem to be the two ugly sisters of MRC policy on ME. Read one participant's experience of these costly trials (here).


Breakthrough in Norway
Norwegian government announces new policy to ME - here. Read of Vaccines and ME link in Norway - here.

 

The GIBSON INQUIRY
The Gibson Inquiry published here. Read IiME response and comments here.