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Thank you for again making this conference available for
ordinary patients at such a reasonable price. The conference was extraordinary
and brought hope to me and my family. Thank you for all you are doing.. |
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I thoroughly enjoyed the conference and look forward to attending
next year. |
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Thank you to everyone for arranging another
successful, exciting and inspiring conference. |
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I
want to say "thank you" for having organised another fantastic conference in
London. |
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A huge thanks to you for an excellent
conference....... I think I can speak for all of us that attended the two days
in London when I say how much we appreciated it and how grateful we are for the
work you're doing for all of us. |
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A huge thanks to you for an excellent conference.
We much appreciated it and how grateful we are for the work you're doing for all
of us
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again
congratulations for your fantastic conference last week. It was again a
really great conference/meeting and we had so much new information, new
contacts.
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A brief note to say a big THANK YOU for your massive efforts
in organising the conference and pre-conference events |
Finally made it to the conference, too ill in previous years.
I found it very useful indeed, and it was just wonderful to see researchers
talking to each other - we patients need to take a back seat to allow their
interactions.FWIW, my take-aways are...
- There are many benefits to the ME/CFS community
consolidating. It may be impossibly hard but I would like to see many
organisations merge into 1-2 to reflect patients' needs - a focus for
donations and a voice to put out via the media
- The illness definition and epidemiology seems to be a huge
barrier in the UK to progress.
- New technology is going to be a great help - not just the
gene profiling, but mass data collection, co-cure, data collection on mobile
devices, plus twitter, facebook, etcMany thanks
again, I cannot tell you how much I appreciate all your hard work.
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Dear Invest in ME
thank you for a great conference!!
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