ME and My MP - MP Responses and Constituents' Views
 

On this page we record responses from MPs or from constituents who have made contact with their MP. Here we can see the feedback from  the people taking part in this campaign. Please contact us if you have contacted your MP and let us know your opinion.

(Please note all messages are moderated before being posted on this site)

 

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Jas

18 July 2006 08:17

I have received what would see to be Angela Browning's last word on the subject and a refusal to sign the EDM -

"You may care to know that I do not sign EDMs because, despite the name "motion", they are rarely debated on the Floor of the House. More importantly Ministers are not even required to give a response. I therefore write to Ministers when constituents contact me about EDMs, so that the Minister is aware of the views being expressed and is required to give a reply." - Angela Browning MP for Tiverton & Honiton

 
Flora McKenzie

20 February 2006 23:51

As a rep for IIME and one who chatted with Sue long before IiMe was conceived I have contacted all Oxfordshire mps.
See David Cameron's reply on the site.
I have also contacted a couple of mps from my home area or Ian's but unfortunately they weren't too supportive because we were out of their area.
Nevertheless by contacting they are aware of M.E and its issues and that is what its about.
AWARENESS.
Plod on folks...email ,write or fax, which ever way you want ..contact ..PLEASE PLEASE make contact with your mp.
IT IS ESSENTIAL for all sufferers and, in my case, ESPECIALLY essential to all younger sufferers.
Florax
Naomi Burgess

7 February 2006 15:11

I have just heard from my MP Rudi Vis, Finchley and Golders Green.
copied below. So now he can be checked on the list.

6th February 2006

Dear Naomi

Thank you for e-mail of the 3rd February and the clear advice that you have to separate out different aspects and suffering of ME. I support fully what you have said and I've taken the liberty to send a copy of this note and a copy of your e-mail to Dr Ian Gibson who champions your cause and to Dr Des Turner who is Chair of the All Party Parliamentary Group and may wish to request Professor Hooper to the All Parliamentary Group.

yours

Rudi
Shanne Woodhouse

14 January 2006 08:10

I contacted Eleanor Laing, MP for Epping Forest asking her to support the EDM. I didn't get a reply.

I also contacted her about ME and education in this area as there are a number of issues: lack of provision post-16 for GCSEs, Connexions not properly established at the time, model for home tuition/out of school support is a unit that teaches the sick, pregnant school girls, school refusers and the permanently excluded. The response was a copy of "Access To Education" from the DfES, which I had quoted in my original letter.

She has been contacted, several times, but the response is less than useful.
Sheryl Nairn

14 December 2005 13:59

Hello Everyone,
 
My name is Sheryl Nairn and I have had M.E. for 19 years.
I'm really pleased to have found your site (through the Co-Cure newsletter) and think it is excellent. Very clear and easy to understand (even for me and my befuddled brain!).
Just thought I'd write as I read about your effort to get our MP's off their backsides to help us - surely a signature isn't too much to ask for?!

Well, apparently it is.  I emailed my MP Vincent Cable (Lib/Dem for Twickenham, who is very supportive of health issues) in September and had two positive responses on 26.9.05 and 29.9.05 agreeing to sign on his return to parliament.
On checking the EDM 260 site in October, he hadn't signed.

I wrote a short note asking again, and received a reply on 8.11.05 saying that, being his party's Shadow Chancellor he cannot sign motions with spending commitments however much he supports the cause.

I'm unsure if, after agreeing to sign in September, he became Shadow Chancellor and then couldn't.  I don't really understand the reasons and I've not been up to following it up, but just thought you would like to know the result of my contact with my MP.  If you want, I can send you copies of my/his correspondence.
 
Good Luck and Best Wishes,
 
Sheryl
Anabela Numao

13 December 2005 12:26

Reply from Mark Field MP

Mark Field was interested to hear about the work of the All Party Group on ME. According to him though I should be aware there are in excess of 400 such parliamentary groups and it is very sadly not possible for each MP to become a member of every single group. However he did say he'd pass on my email to Dr Des Turner in respect to my request that the group invites Professor Malcolm Hooper to speak at one of their meetings.

Well, I tried! I used your template on my email to him and he responded with a personal letter within a week, not too bad.

Good luck with the other MP's

Regards
Anabela