Welcome to INVEST in ME

8th Invest in ME International ME Conference 2013

Infection, Immunity and ME - Mainstreaming ME Research

Conference News

Who we are
We are an independent UK charity campaigning for bio-medical research into Myalgic Encephalomyelitis (M.E.), as defined by WHO-ICD-10-G93.3.
We have links nationwide and also internationally. Invest in ME are one of the founding members of
The European ME Alliance.

Our aim is to bring together like-minded individuals and groups to campaign for research and funding to establish an understanding of the Aetiology (causes), Pathogenesis (harmful effects) and Epidemiology (the pattern of distribution of a disease through a population) of M.E. This should lead to the development of a universal "thumb-print" test for diagnosis of M.E. and, subsequently, medical treatments to cure or alleviate the effects of the illness.

Invest in ME want to establish a national strategy of biomedical research into M.E. and establish a UK and European Centre of Excellence for biomedical research into M.E.

Please help make M.E. an illness which is properly understood and where adequate funding is provided for biomedical research into ME allowing treatments and cures  to be found.





The ME Information Centre
We wish to make this an easy destination to visit to find out anything about M.E. that you would like to know. Whether you are a sufferer, a parent/carer, a person involved in the media (see our Media pages) or somebody who would like to know more then visit our Information Centre for an insight into ME.

The column on the right covers other news items and includes an archive for all items posted here.



The Tragedy of ME
The effects of ME are apparent to any M.E. sufferer and their carers/parents.  Here is a sample of stories from M.E. sufferers which illustrates the sadness, and the reality, behind this illness. It also shows the positive approach of M.E. sufferers and serves to dispel any notions of depression as a causative feature of M.E., something which often accompanies many of the less-informed handouts given to, or by, the media and some organisations.
The Story Gallery - shows some of the tragic but hopeful stories concerning M.E.




Can you Help?
If you suffer from M.E. then we invite you to support us - we are sufferers and carers of ME sufferers ourselves - contact us now for more information on how we can work together to make a difference.
If you are a parent of a child with M.E. then we know what you are going through - help us to help you to do more than just cope.
The contacts page allows us to know about you.
Also - sign up for our newsletter - click here for more details.
Also ways to help and support Invest in ME - click here




Ideas?
There is no monopoly on a good idea to raise funds for biomedical research - go to our Ideas Factory page and contact us with your idea.
If you want to browse more use our site map to show which sections we have and so limit the effort required to find some information.



ME-baY
Use our ME-bay to auction and fund biomedical research into ME. See our IiME store area.

 
CURRENT NEWS

Let's Do It for ME - Our Biomedical Research Fund tops £100k
Help us fund a UK Rituximab trial for ME
ME Awareness Month 2013
Conference DVD 2013
Conference Events London 2013
Norwegian Research Funding Campaigns
A Tale of Two Collaboratives
IiME Meeting with CCG Director for Commissioning
Let's Do It for ME - Our Biomedical Research Fund tops £92k
New Awareness Ad in London
ME/CFS/Pituitary Awareness - Christine's Legacy
ME Carer's Story - Lili
Collaborative Researchers Meeting London 2013
Human Enteroviruses and Chronic Infectious Disease
IIMEC8 - 8th IiME International ME Conference 2013
The BIG Cause - IiME Proposal

IiME GP Information packs to Scotland
SOBAFF supporting IiME
Flow cytometer appeal from AHMF



PAST NEWS ITEMS
Click on the title above to see past news items
Clinical Autoimmunity Working Group Meeting
IiME Proposal for UK ME centre
IiME Request minister participation in webinar
National Archives on ME
IiME Conference DVD 2012
Journal of IiME - Conference Edition
IiME Conference 2012 Reviews
2013 Calendars -supporting IiME
Lest We Forget
PACE Trial Update
EMEA DSM-5 Submission to APA
IiME Statement May 2012
APPG Agenda 4th July
What is Happening with Research into ME and Rituximab?
IiME Statement April 2012
Emily Collingridge
Defending the Indefensible
Statistics and ME
Cardiopulmonary Exercise Testing to Evaluate Post-Exertional Malaise
“Grey” Information about ME/CFS
Bursting Our Bubble - Norwegian Style
IiME complaint to Press Complaints Commission
IiME Charity of the Month of John Lewis - Please Vote
Gurli Bagnall
Letter to RCGP/InnovAiT
It's a Funny Old World
Science vs Psychiatry
DWP DLA Review - IiME input
European ME Alliance  submission to APA DSM-V Draft Proposals
IiME arrange MPs to meet with IIMEC6 presenters
MAY Awareness advert London Business Matters
“Grey” Information about ME/CFS
The Media and ME
Ignorance is not an option. Letter to Editor of the Lancet
Letter to RCPCH regarding NICE statement
DWP & PACE Trials
IiME Responds to Lancet PACE Trials Publication
Initial Statement on the PACE Trials
Can the MRC PACE Trial Be Justified?
Magical Medicine: How to Make a Disease Disappear

Read more news in our news archive >>

ME INFO CENTRE Information & articles on ME. Latest -
Why ME/CFS may kill you:  Cardiovascular disorders in ME/CFS
Interstitial cystitis and CFS
More evidence of inflammation in ME
Why ME/CFS may kill you:  Cardiovascular disorders in ME/CFS
The role of viruses in ME
CBT/GET Ineffective for ME

Read more >>

ME RESEARCH Details of biomedical research into ME. Latest -
IiME foundation project for proposed research facility
Bond University receive  $800,000 for research to identify cause/treatment of ME
Double-blind, placebo-controlled phase II study of Rituximab
ME is (bio)logically explainable
Using Cardiopulmonary Exercise Testing to Evaluate Post-Exertional Malaise in ME/CFS
International Science Symposium ME/CFS
Chronic Fatigue Syndrome after Q fever
Dr Lerner - management of glandular fever and sequelae
Critique on model for ME/CFS put forward by Harvey and Wessely in BMC
Dr Julia Newton - Orthostatic symptoms predict functional capacity in CFS
Dr Jonathan Kerr - Microbial infections in eight genomic subtypes of ME

Read more >>

CAMPAIGNING Details of past ME awareness campaigns.
IiME organise IIMEC6 researchers visit to Parliament
IiME input to the Jan APPG
Letters to the DoH
Letters to the CMO
IiME supporter arranges Adjournment Debate in parliament
Letter to the PM from IiME
Response to CDC 5-year plan
Calendar of Chronically Ill
Nice - What's Next?

Read more >>

 

FUNDRAISING A page on fundraising activities and awareness events to support Invest in ME.
Let's Do It for ME
Current Events
Past Events
Ways to Support IiME

Read more >>

SEVERE ME
From the IiME Conference 2006 DVD - Severe ME as shown from Norwegian TV channel NRK's Puls programme.

IiME and Meridian ITV join forces to publish the Meridian interview of ME patients. ME as it is - one of the best media pieces on ME. Click here.

Read more >>

The JOURNAL of IiME

A blend of research, science, facts, politics and real-life experiences relating to ME/CFS.

Read more >>



LOST VOICES Lost Voices - From a Hidden Illness

Read more >>




GUIDELINES  £1.75p each(+p&p)
Invest in ME have been given the rights to distribute the Canadian Consensus Guidelines in the UK - click on image. Contact IiME to purchase.