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Welcome to the INVEST in ME community
Who we are We are an independent UK charity campaigning for bio-medical research into Myalgic Encephalomyelitis (M.E.), as defined by WHO-ICD-10-G93.3.
We have links nationwide and also internationally.
Our aim is to bring together like-minded individuals and groups to campaign for research and funding to establish an understanding of the Aetiology (causes), Pathogenesis (harmful effects) and Epidemiology (the pattern of distribution of a disease through a population) of M.E. This should lead to the development of a universal "Thumb-Print Test" that can confirm the presence of M.E. and, subsequently, medical treatments to cure or alleviate the effects of the illness.
Invest in ME want to establish a national strategy of biomedical research into
M.E.
Please join us and help make M.E. an illness which is properly understood and where
adequate funding is provided for biomedical research into ME allowing a treatment and cure
to be found.

The ME Information Centre
We wish to make this an easy destination to visit to find out anything
about M.E. that you would like to know. Whether you are a sufferer, a
parent/carer, a person involved in the media (see our Press
pages) or somebody who would like to know more then visit our
Information Centre for an insight into ME.

The
Tragedy of ME
The effects of ME are apparent to any M.E. sufferer and their carers/parents.
Here is a sample of stories from M.E. sufferers which illustrates the sadness, and
the reality, behind
this illness. It also shows the positive approach of M.E. sufferers and serves to dispel any notions of depression
as a causative feature of M.E., something
which often accompanies many of the less-informed handouts given to, or by, the
media. Meet ME - some of the tragic but
hopeful stories concerning M.E.

Can you Help?
The answer is almost undoubtedly YES!
If you suffer from M.E. then join us - we are sufferers and carers of ME sufferers
ourselves - contact us now for more information on how we can work together to
make a difference.
If you are a parent of a child with M.E. then we know what you are going through -
help us to help you to do more than just cope.
The contacts page allows us to know about you. Also - sign up for our newsletter
- click here for more details.

Ideas?
There is no monopoly on a good idea to raise funds for biomedical
research - go to our Ideas Factory page and contact us with your idea.
If you want to browse more use our site map to show which sections we have and
so limit the effort required to find some information.

ME-baY
Use our ME-bay to auction and fund biomedical research into ME. See our
IIME store area.

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NEWS FROM IiME
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Sub Grouping & Treatments for
ME/CFS
Click here
for our Press Release
for biomedical research
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ME Book Project
'Lost
Voices'
IiME's new project -
click
here
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Journal of IiME
The
new issue of the Journal has been published.
Now including the International ME/CFS
Conference section.
Click on image.
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Severe ME
From the ME Conference
2006 DVD - Severe ME as shown from
Norwegian TV channel NRK's Puls programme.
IiME and Meridian ITV join forces to
publish
the Meridian interview of ME patients. ME
as it is - one of the
best media pieces on ME.
Click here. |
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Essential
investigations for PWME
From our January newsletter - testing for a
standardised set of inflammatory biomarkers rejected by NICE-
click here |
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Canadian
Guidelines

46p each (+p&p)Invest in ME have been
given the rights to distribute the Canadian Consensus Guidelines in the UK - click here.
Contact IiME to purchase. |
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NICE GUIDELINES
NICE published their official Guidelines for CFS/ME in 2007. Patients have
now succeeded in bringing NICE before a judicial review. See IiME's 2007 response
to NICE -
click here
| IiME previously published a 38,000 word response to the
NICE Draft Guidelines for CFS/ME - in PDF
here
(our Nice pro-forma
here) |
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Margaret
Williams' comments
here |
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IiME's submission to Health Select Committee on NICE-click here |
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Letter
from
America
Pat Fero's update on the WPI-click here |
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ME Standards
- ME Clinics
From our August 2007 newsletter - a start on establishing basic protocols and standards for ME - what we need and what we
don't need from ME
Clinics.
click here. |
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DLA and ICB Statistics
From our August newsletter - statistics on DLA and IB for pwme -
click here. |
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The Info Centre Library
Includes two booklets from Dr. Byron Hyde.
The Nightingale Definition of ME
- produced for the Gibson inquiry and the IiME ME/CFS Conference 2007 -
click here.
And Dr. Byron Hyde's little red booklet of What is ME - produced for the
Invest in ME Conference 2006
Click
here |
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CBT, GET and FINE Trials Saying NO to CBT
Forced to accept CBT for a
neurological illness? Consider
these points.
Experiences of Graded Exercise
One person's
experience of GET.
FINE Trials Experience
The FINE trials and the PACE trials seem to be the two ugly
sisters of MRC policy on ME. Read one participant's experience of these costly trials
(here). |
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