The National Institute for Health and Care Excellence (NICE) published their document for clinical guidelines released on 22nd August 2007).
The document was proposed for use in the NHS in England and Wales regarding chronic fatigue syndrome / Myalgic Encephalomyelitis (CFS/ME).

Although not an original stakeholder (Invest in ME only became a charity in May 2006) we registered to become a stakeholder in these guidelines as soon as we could and supplied our response to the Draft Guidelines in 2006.
The charity published a response to the full clinical guidelines in 2007.

The charity has continued to create submissions to NICE and has attempted to engage with the NICE director to promote real change and progress in these matters. In July 2017 Invest in ME Research responded to the NICE 10 year surveillance (2017) – CFS/ME.
The following year the charity had extensive correspondence with NICE Guidelines Director Professor Mark Baker and has attempted to engage with the NICE to promote real change and progress in these matters.

In 2020 the charity replied to the new draft guidelines.

The charity continues to create submissions to NICE and to comment on NICE policies towards ME.

Below is a timeline or submissions in order to follow the historic flow of NICE policies.

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Invest in ME Research

NICE CAMPAIGNING

2006

Draft NICE Guidelines

Although not an original stakeholder (Invest in ME only became a charity in May 2006) we registered to become a stakeholder in these guidelines and supplied our response to the Draft Guidelines in 2006.

The National Institute for Health and Clinical Excellence (NICE) published their draft document for clinical guidelines in November 2006.

Invest in ME Comments on the 2006 Draft guidelines: Click here

2007

Full NICE Guidelines Published

The National Institute for Health and Clinical Excellence (NICE) published their document for clinical guidelines released on 22nd August 2007). Click here

The charity published a response to the full NICE Clinical Guidelines 2007 CG53 after they were published: Click here

IiME's submission to the Health Select Committee investigating NICE Click here

2009

JUDICIAL REVIEW of NICE GUIDELINES

The NICE Guidelines for ME/CFS - Reasons for Rejection - a view from Norway Click here

NICE Guidelines - What's Next? Click here

Statements of Concern about CBT/GET provided for the High Court Judicial Review of February 2009 Click here

2013

IiMER COMMENTS

NICE - A POVERTY OF REASON Click here

2017

IiMER Response to NICE Consultation Review

Response to NICE 10 year surveillance (2017) Click here

2018

CORRESPONDENCE WITH NICE GUIDELINES DIRECTOR

IiMER held extensive correspondence with NICE Guidelines Director Professor Mark Baker. Click here

2020

COVID-19, NICE and ME

NICE - Statement about graded exercise therapy in the context of COVID-19. Click here

Invest in ME Research submitted a response to NICE and has made this analysis. Click here