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Mis or Missed Diagnoses?
To enable correct diagnosis then a standard set of diagnostic guidelines needs to be in place.
If the definition of the illness is vague (if the name is not agreed upon, the symptoms therefore not agreed, the diagnostic criteria not standardised) then, of course, the diagnosis and the treatment will be liable to be incorrect.
Misdiagnosis is a known problem with ME.
Missed diagnosis is an additional risk once the ME label is given to a patient - something that only increases in risk the longer a patient is left to their own devices in managing the disease.
The lack of usage of a common set of guidelines has also allowed too much flawed research to be funded thus wasting valuable time and money.
This has been a major obstacle in obtaining progress for people with ME and has allowed far too many cases of missed or misdiagnosis to occur.