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Listen to the Patients
"I saw 2 GP's in the summer holidays. They were cold to the point of hostile when I had the temerity to suggest that I had ME/CFS."
"And because of my test results, they no longer tell me my illness is in my head, they just won't accept ME as the cause.”
""you have ME, I am not going to waste time doing tests on you" "
"I hope it demonstrates how utterly distressing it is for sufferers to not only cope with their ever deteriorating health,
but to cope with supposedly professional people who use every opportunity to psychologically batter them into submission. "
“Being in the medical profession I am angered and embarrassed by the way I'm treated with this illness."
" I went to a Manchester hospital. That’s when my nightmare began. I felt really ill at that time and a sister said it was all in my mind. "
"I was interviewed by this supervisor every Monday and every Friday from then on. I felt like I was a criminal.
She took me into a small office and every time asked how I was doing and how long would it be before I worked full time again because
I was straining the section as they had to cover for my absence"
"At work I have been asked to go to see the company doctor as no-one believes I'm unwell yet they see me struggling to walk on occasions!"
" I felt humiliated and ridiculed by someone who was clearly a psychiatrist of some description "
"So Rose had to do a 6 week diagnostic test for PRS with two 6-second sessions of physio, adding on 10% each week and starting with 10 minutes high activities.
This included education, art therapy and visitors.
Even if Rose was unconscious from blacking out then someone had to read to her and the curtains had to remain open - 10% each week."
ROSE - An ME Carer’s View
Fine Trials - Alice's Story
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