ANNABEL’S STORY by Richard Senior
She was born Annabel Robinson, on the
4th March 1942, eldest daughter of Squadron-Leader ‘Robbie’ Robinson, who had
commanded 73 (Hurricane) squadron in the Battle of Britain. She died on 8th
January 2003, 2 months short of her 61st birthday. Too young to die….
Sent to boarding school in her
mid-teens, she began to notice how quickly she got tired, and how difficult it
was becoming to keep pace with her peers. In spite of this, she excelled at
everything: athletics, gymnastics, games, drama, art, music, and above all,
examinations. So much so, that she easily achieved a place at Oxford, and only
narrowly missed a First – simply because by now she was unable to work more than
2 hours out of 24, sometimes taken in the middle of the night.
She realised she would need support,
from whomsoever would give it, because she now knew that she would not be able
to cope on her own. She therefore accepted the first offer made to her, and was
married before she graduated.
For the next 30 years, she struggled
with what was easy for most people, including raising a family of three – but
was never able to hold down a job of any sort, because of her crippling lack of
stamina. Her first husband died, and she and I were married in 1979. So well was
she able to disguise her condition, that it was some time before I realised how
ill she was. Smells affected her so badly, that they seemed almost to drive her
to distraction. Noises terrified her; bright light blinded her. And, worst of
all, she began to abreact violently to foods, one after another.
Not until 1990 did we realise what
was wrong: ME/CFS. There was some treatment about by then, but limited, and we
took what was on offer. Even if it had been the right treatment, by that time it
was too late: so many years of neglect, disbelief, wrong medication, wrong
diagnoses; so many times referred to psychiatrists, who to a man sent her away
because they couldn’t find anything wrong – with a prescription for an
anti-depressant just in case….
The foods that she could eat without
becoming very ill dwindled in number. She coped with this situation for 2/3
years by going on a semi-fast, say 4/5 days, and then trying again. Bit by bit
the ‘good’ days became fewer, and by the autumn of 2002 there was virtually
nothing left that she could eat with impunity. Her heart also began causing
trouble around this time.
45 years with such a condition,
misunderstood and unrecognised for most of those years, is enough. Many people
would have given up long before that. Annabel NEVER gave up; she simply found
that there were no ‘safe’ options left – and stopped eating altogether.
She survived for 52 days – and died
at home, with me by her side. Had she been born say, 20 years later, this need
never have happened. Today there is palliative treatment for this appalling
illness available, but no definite cure in sight yet. In her young days there
was simply nothing around.
CFS/ME seems to bring out the best
in people. Annabel was an outstanding example of this, in that she poured all
her available efforts into helping people, particularly those distressed or in
emotional trouble of some kind. She helped many such people, who kept in touch
with her till the end of her life, many years after she had ‘rescued’ them and
restored their confidence in themselves, in some cases even preventing their
taking their own lives. She touched many lives, even though so very many never
even met her. She will be greatly missed. She was greatly loved.
This is a bald and inadequate
account. There is so much more to say about this incredibly courageous and
loving woman. I WILL be saying it!