In February 2004 Birgitte was diagnosed as having VIROSE
by the head doctor. Her own doctor thinks it could be Myalgic
Encephalomyelitis as does the main hospital's head doctor. He calls
it Post Viral Fatigue Syndrome.
Birgitte is left
in a corridor at the hospital as no tests turn out medically positive (neither do the
tests which have been sent to another hospital in Trondheim). She is
sent back home, but becomes even more ill and is finally sent to the psychiatric
ward of the same hospital in June 2004. Here
they diagnose her with KONVERTION Neurosis, but she refuses compulsory training and electroshock treatment as
she knows that she isn’t suffering from any psychological disease and has this also documented by the diagnosis of
the doctors previously.
At this point some external doctors
(experts) were contacted. All of these are of the opinion that
it is ME and one produces a specialist declaration which is sent to the main
Birgitte is put into the nursing home in August
2004. The head nurse receives a treatment manual for seriously
sick ME patients (written by the Norwegian
ME organization) and promises to follow this. At this point in time Birgitte
was able to sit in a wheel chair, could use the
toilet and could move her arms and legs.
However, she is put under conditions of extreme stress
in the nursing home. Due to a total lack
of knowledge and competence of this illness the nurses and the nursing home doctor still think she has a psychiatric
illness. The treatment manual from the Norwegian ME organisation is, therefore, not being used and the patient is getting more and more ill.
leaders of the nursing home say it is the patient's own fault and that she is manipulating
the situation. The patient says she cannot
tolerate noise and light (something very common for ME sufferers). She has to fight, explain, manage,
and several nurses are unfriendly and rough.
A formal complaint is sent to the
county chief medical doctor