Centre of Excellence for ME Support
Mainstreaming Research into ME
Support for our Centre of Excellence proposal and the strategy of international collaboration in research into ME has been increasing steadily.
We are blessed to have an great number of dedicated supporters who are helping us move mountains to change the way research into this disease has been conducted over the last generation.
We would like to thank all those who have supported the charity with their donations and with their efforts to raise awareness of the activities that the charity and supporters are creatingperforming to make progress.
IiMER have also had support from organisations - in UK and from outisde the UK - for our research.
New Group Donation
Today we would like to thank the latest group to support Invest in ME Research.
ME Support, Isle of Man has donated £3000 to Invest in ME Research
All of this will go directly to the Centre of Excellence research where we are building up the research base and deveoping the foundations for continuity.
Invest in ME Research Chairman Kathleen McCall thanked the ME Support, Isle of Man Chairman Celia Marshall -
We were delighted to receive your letter with enclosed donation of £3,000 recently. It was very generous of M.E. Support (IOM) and greatly appreciated by us.
As requested this donation shall be placed directly into our Biomedical Research Fund. The charity is working hard on a number of projects which we feel will help many affected by this disease. It is due to the generosity of supporters and groups such as yourselves that enables us in our ongoing work as we build up a strategy of robust research into ME.
Thank you too for kindly inviting a representative of the charity to the Isle of Man to meet with the group and government personal
Again many thanks to all at ME Support IOM, it means a great deal to us to receive such generou support
In discussions with Craig Morris from the IOM group it is clear that we share the same ambitions and understand the same urgency for research into ME.
Craig summarised some of the points made about the charity's work which has been made possible by wonderful supporters
A few Invest in ME Research facts:
- Their focus is on finding, funding and facilitating biomedical research and to lobby to change government perception and understanding of the disease
- Formed in 2006 as a charity
- They have an advisory board of top researchers to assist in planning and strategy of research. It was formed in 2014.
One of the most difficult part for researchers is to find correctly diagnosed patients as many patients are outside the healthcare system.
- They have already raised a lot of money to fund the Centre of Excellence for ME.
- There are 4 PhDs working on ME research in Norwich Research Park with University of East Anglia and Quadram Institute Bioscience.
They would like to recruit a Senior Research Associate to help with the clinical trials.
- They have a PhD funded at UCL working with Dr Jo Cambridge.
- They collaborate at a European level, e.g. their Colloquiums & they initiated the European ME Research Group (EMERG).
- They have also facilitated research collaboration between UEA/Quadram Institute Bioscience and Oxford University and the Norwegian researchers in Bergen, where the Phase III rituximab trial is taking place.
- They have recently been involved in the NIH workshops on creating common data elements for ME.
All of this will be easier with the Centre of Excellence as everything can be developed from a sound research base.
Following the recent NIH announcement of funding for USA Centres [click here] - a decision which entirely validates Invest in ME Research's ambition and vision in developing the UK Centre of Excellence - this latest donation is a welcome piece of news.
Our model and plans also provide the necessary attention and urgency to this disease which people with ME and their families deserve.
Our plans are there - the development of the UK Centre and links to other
research points and international Centres has
Research is underway.
We invite all to support us.
There are several current fund initiatives which go to support the different projects underway.
Some of the funding initiatives have been reached and others are ongoing.
Our eventual aim is to fund our five year plan for the Centre which will provide the base for a new generation of research into ME which will focus on biomedical research aimed at finding the cause(s) of ME and developing effective treatments.
Ways to help us are shown below.