Update for CofE B-cell/Rituximab Research
Finding Facilitating Funding MAINSTREAMING Research into ME
Following another successful week of research meetings in London - with the International Biomedical Research into ME Colloquium 7 and the 12th International ME Conference IIMEC12 - we have good news of a new update to our B-cell/rituximab projects being funded at the UK Centre of Excellence for ME - which brings the total raised so far for projects to £513,000.
The supporters of Invest in ME Research continue to amaze and our powerful team carries on in the mission to change the landscape of research into ME, which will lead to a change in treatment and perception of this disease by media, the public and,importantly, within healthcare systems.
We are now funding future phases of the work to develop the Centre of Excellence for ME and the research being performed and planned, in collaboration with international biomedical researchers, will bring hope to all people with ME and their families.
As we prepare for the results from the Norwegian multi-centre phase III trial we wil prepare by collaborating with the team at Haukeland University Hospital in Bergen, Norway. A new visit by the Haukeland team is aimed for the autumn (the previous visit was in January).
A new advert for a Senior Research Associate to plan and develop the UK rituximab trial has been announced - see here.
We invite people and organisations to support us as we advance the development of the UK Centre of Excellence and as we build capacity for the biomedical research strategy that the charity has focused on for twelve years since its inception.
Ways to help us are shown in the column at the right of our page.
Our dedicated microsite for that project with more details is available here.
And the bear now has his own Instagram site with regular updates in his planning - https://www.instagram.com/explore/tags/iimebear/
Our current funding targets and status are shown here -
Helping Fund Our Work
Below are ways to help the charity fund the research and the work that is carried out.
Centre of Excellence
Funding of research and studentships to develop a Centre of Excellence for ME in Norwich Research Park
For the biomedical research fund to fund new research projects at the Centre or connected
For education of medical students,bursaries for young/ECR researchers and clinical fellowships for GPs
Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS), as defined by WHO-ICD-10-G93.3. and promoting better education about ME.
Invest in ME Research is run by volunteers - patients or parents of children with ME - with no paid staff.
Overheads are kept to a minimum to enable all funds raised to go to promoting education of, and facilitating and funding biomedical research into, ME.
The charity believes that biomedical research into ME is crucial in order to make progress in treating this disease. We also believe that education of healthcare staff, the media, government departments, patient groups and patients is to be a priority.
The charity's objectives are to initiate, maintain and augment a strategy of high-quality biomedical research into ME, to provide education about ME, and to raise awareness of the effects of the disease on patients and families.
We are a small charity but with supporters who have big hearts - and a determination to get the best possible research to be carried out to find the cause of myalgic encephalomyelitis and develop treatments.
We have links nationwide and also internationally.
Invest in ME Research is a founder member of the European ME Alliance (EMEA), a collaboration of European national charities and organisations.
The charity was also responsible for initiating the European ME Research Group (EMERG) concept, a collaboration of European researchers from major institutes.
The charity also has initiated the European ME Clinicians Council (EMECC), a network of European clinicians who will work together and share experiences of treating ME in order to establish better standards for patient care.
We do not receive, and have never received funding from government or government organisations.
We believe that we need a national strategy of biomedical research into ME to produce treatments and cures for this illness.
We have always believed that the seriousness of the situation regarding ME makes it necessary for governments to provide "ring-fenced" funding for biomedical research in to ME (as was provided for HIV/AIDS) in order to address the need for development of diagnostic tests and remedial treatments.
However, the charity does not believe in merely asking for funding - the charity has pursued of policy of raising funds itself for biomedical research in order to fund research at top UK institutes. More information is available here.
We believe that clinicians should standardise on usage of the most up-to-date criteria (currently we emphasise the Canadian Criteria) for diagnosis so that there is an agreed basis (noting that evolutionary improvement would be welcomed).
The charity organises an annual research Colloquium and conference regularly attracting delegates from over 15 countries and funds research at Quadram Institute Bioscience/University of East Anglia and University College London as well as influencing collaboration elsewhere, in UK, Europe and beyond.
Our conferences and colloquiums were organised from the beginning in order to provide a platform for research and a means of facilitating education about ME.
In order to bring the best education and research to bear on ME and to find and facilitate the best strategy of research into this disease the charity welcomes support for our work.
Our aim is to fund and facilitate research in order to establish an understanding of the aetiology, pathogenesis and epidemiology of ME. We hope this will lead to the development of a universal diagnostic test(s) that can confirm the presence of ME and, subsequently, medical treatments to cure or alleviate the effects of the illness
Our efforts are focused on setting up a UK/European Centre of Excellence for ME which will provide proper examinations and diagnosis for ME patients and a coordinated strategy of biomedical research into ME in order to find treatment(s) and cure(s).