Donations Update for Centre of Excellence Projects

Finding, Facilitating Funding Biomedical Research into ME

A new update to our gut microbiota and related projects being performed at the UK Centre of Excellence for ME in Norwich Research Park brings the total raised so far for projects there to £184,000.

With a business plan being formed for development of the UK Centre of Excellence for ME we are now funding future phases of the work to build this future for UK and European research into this disease.

More about this research is available here.

There are currently 5 PhDs involved in research into ME which is underway at UEA/IFR and UCL.
The preparations are being made a UK clinical trial of rituximab with close collaboration with the Norwegian researchers at Haukeland University in Bergen.
We are hoping to fund another PhD student and more medical students who will participate in the research being performed.
We are very thankful to our supporters for the amazing progress being made.

With enough support this can be achieved and change the face of research into ME for ever.

Please join our CofEforME support campaign - click here

Our mascot, Professor Ldifme, was created by our supporters.

Ways to help us are shown in the column at the right of our page.

Our 2017 2-day Biomedical Research into ME Colloquium 7 (our annual seventh research colloquium) and the 12th International ME Conference 2017 - both events in London.



Our Current Funding Streams

Please click on the progress circles below to see the options to contribute to these funds and donate if possible.

CofE for ME
B-cell/Ritux

Trial
Gut Microbiota
Medical

Students

Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS), as defined by WHO-ICD-10-G93.3. and promoting better education about ME.

Invest in ME Research is run by volunteers - patients or parents of children with ME - with no paid staff.

Overheads are kept to a minimum to enable all funds raised to go to promoting education of, and funding for biomedical research into, ME.

The charity decided early on that biomedical research into ME was crucial in order to make progress in treating this disease. We also decided that education of healthcare staff, the media, government departments, patient groups and patients was to be a priority.

The charity's objectives are to initiate, maintain and augment a strategy of high-quality biomedical research into ME, to provide education about ME, and to raise awareness of the effects of the disease on patients and families.

We are a small charity but with a growing number of supporters who have big hearts - and a determination to get the best possible research to be carried out to find the cause of myalgic encephalomyelitis and develop treatments.

We have links nationwide and also internationally.

Invest in ME Research is a founder member of the European ME Alliance (EMEA), a collaboration of European national charities and organisations.

We do not receive, and have never received funding from government or government organisations.

We do believe that the seriousness of the situation regarding ME makes it necessary for governments to provide "ring-fenced" funding for bio-medical research in to ME (as was provided for HIV/AIDS) in order to address the need for development of diagnostic tests and remedial treatments.

We believe governments should standardise on usage of the Canadian Criteria for diagnosis so that there is an agreed basis (noting that evolutionary improvement would be welcomed).

We believe governments need to not only endorse and adopt, but officially promote the World Health Organisation classification of ME as a neurological illness, as defined by ICD-10-G93.3, separate from illnesses related to mental health classified under ICD-10-F48, in order to provide the distinction of the neurological disease.

We believe that governments should provide a national strategy of biomedical research into ME to produce treatments and cures for this illness.

The charity organises an annual research Colloquium and conference regularly attracting delegates from over 15 countries and funds research at Quadram Institute Biosciences/University of East Anglia and University College London as well as influencing collaboration elsewhere, in UK, Europe and beyond.

Our conferences and colloquiums were organised from the beginning in order to provide a platform for research and a means of facilitating education about ME.

In order to bring the best education and research to bear on ME and to find and facilitate the best strategy of research into this disease the charity welcomes support for our work.

Our aim is to bring together like-minded individuals and groups to campaign for research and funding to establish an understanding of the aetiology, pathogenesis and epidemiology of ME. We hope this will lead to the development of a universal diagnostic test(s) that can confirm the presence of ME and, subsequently, medical treatments to cure or alleviate the effects of the illness

Our efforts are focused on setting up a UK Centre of Excellence for ME which will provide proper examinations and diagnosis for ME patients and a coordinated strategy of biomedical research into ME in order to find treatment(s) and cure(s) - http://www.cofeforme.eu