Invest in ME is a UK charity which promotes
better education about Myalgic Encephalomyelitis (ME or ME/CFS) and
initiates and funds biomedical research into ME.
We have heard of the case of Karina Hansen
who is diagnosed with ME and who is the subject of some international
attention regarding her treatment.
Last year we wrote to the previous minister
for health, and to the physicians who have been treating her, with an offer
This year we have twice written to you and
to the physicians at Hammel Neurocentre to repeat this offer (in the
We have received no reply.
Indifference to the plight of people
affected by ME is nothing new to us - we experience that lack of any sense
of concern from UK officials on a regular basis.
From whichever source it comes it is always
unacceptable - and especially so when it concerns a young adult who
seemingly cannot defend herself.
We have already mentioned that the charity
organises a conference and research meeting in London every year.
We would ask you again to consider the
attached letter from the charity and our repeated offer to help you help
This is an offer to help with the treatment
of Karina using the experience of a wide range of researchers and physicians
who will be gathered together in London in May.
Together with members of the European ME
Alliance we are prepared to help you to help Karina.
This is an opportunity to apply some of the
best knowledge about ME to help one of your citizens.
We would respectfully state that is your responsibility to consider this
and the Board of Invest in ME
Invest in ME (Research)
UK Charity NR 1114035
9th Invest in ME International ME Conference 2014