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You organised the most impressive conference. I learnt so much
and am very grateful to you.
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Thanks once again for such a wonderful Conference in London, the best I´ve
ever seen.
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Thank you for a great day in London, the 29 of May. It was an interesting
conference.
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I would just like to thank you for putting on a wonderful conference
full of excellent speakers and a wealth of information regarding severe
ME.
I consider myself to be one of those severe sufferers that you were
highlighting this year and I also have a fiancee at home who also has
severe ME for the last 20 years, so I am grateful to Invest in ME for
bringing it to the attention of a wider audience.
I was delighted to see in attendance also my consultant and two of his
staff which I think was vital for him to gain a better understanding
about severe ME.
I was especially pleased of the video that was shown really showing
severe ME as this I think gave a very moving account of what it was to
be in that position and would of had a huge impact on those watching it.
Once again thanks for an exciting conference with excellent speakers. I
shall look forward to the DVD.
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Thank you for a really excellent conference. I
particularly found Dr Nicolson's presentation helpful to bring all the strands
together. |
Just a brief note to
thank you all for having arranged and managed another
excellent conference last Friday.
Virtually all the speakers
had some interesting details and news to convey, but I
felt that the findings on H2S as presented by Professor
Kenny de Meirleir were particularly interesting and
important, even though he and his team may have to do
another study to demonstrate that this kind of
abnormality is not present in a different control group
of patients suffering from another chronic or serious
disease, before the test he proposes will stand a
realistic chance of being accepted as a diagnostic tool.
It was also rewarding to
hear and read of the remarkable recovery of some of the
Norwegian patients under Professor Meirleir's
supervision and guidance. So there's hope at last, I
trust in the not too distant future.
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the conference was extremely well
attended - in terms of feedback it was re-assuring to
hear that the academics are making clearer connections
and encouraging the clinicians to think about the
implications of these variables when treating patients.
As voiced by many on the day, it seems a shame that the
desperately needed tests and measures to confirm
possible onset are not readily available and possibly
the reason why there still remains a very" them and us"
culture in the UK.
The breaks and the opportunity to discuss patients
individual experiences was also invaluable- I even came
away with details of tried and tested interventions,
which I will definitely pass on to my patients.
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Thank you for a
wonderfully organized conference! The yearly IiME
conferences have become the most important
events in Europe, with the best speakers and with focus
on subjects that really matters in the battle that we
are all fighting. |
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the conference was top
!!!.
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Thank you for your excellent
organization of the conference and for looking after me
while juggling a thousand other details. |
