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Having reviewed the full version of the
NICE Draft Guidelines the IiME response is now available at this address
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http://www.investinme.org/IIME%20Campaigning-NICE-Clinical-Guidelines.htm
Reading the full version of the draft
guidelines is no easy task for a fully fit person, let alone for a
person having to combat the effects of ME. Some of our observations of
the guidelines include -
- The document is inconsistent in a
number of areas - especially terminology
- Psychiatric paradigms are embodied
in the recommendations for therapy and treatment
- Graded Exercise Treatment (GET),
already known to be potentially harmful to people with ME, is put
forward as a therapy/treatment
- GET is put forward, along with
Cognitive Behaviour Therapy (CBT), as treatments of first choice
- The NICE group formulating these
guidelines show a disingenous side by comparing the use of these
treatments for ME with the use of these treatments for cancer and
diabetes and other illnesses
- The intention to keep as broad a
range of fatigue states as possible within this document is clearly
evidenced
- Essential biomedical research
which distinctly shows the biological nature of ME is ignored
- The layout and format of the
document is poor
- The objectives of the Nice Draft
Guidelines are not met
IiME find the NICE Draft Guidelines unacceptable as they are. A
unique chance has been lost and all patient groups need to consider
seriously whether to allow these guidelines to see the light of day.
If you wish to contact IiME about the NICE guidelines, or our
response, please
contact us. |
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