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The Norwegian ME Association, Norges Myalgisk Encefalopati
Forening, was founded in 1987.
Current
Status/Affiliations
At the end of 2006 there were 1371 members from all over the country.
Membership/Facilities/Services
It has established self-help groups in many counties, and once a
year all the group leaders gather in Oslo for an 'update' seminar, and to share
their experiences and get new inspiration. Its office is in Oslo, centrally
located behind the university. It provides factual information about ME to lay
and health professionals, and helps and supports people with ME and their
families and carers. Twice a year, it publishes a newsletter, and a magazine
"ME-News" with medical articles and useful information. It works both nationally
towards health authorities and government, and internationally to raise
awareness of the seriousness of ME. The association is also a member of the
Norwegian Federation of Organisations of Disabled People (FFO).
The Norwegian association organises an 'open house' twice a month
and every Tuesday they have a person available to discuss with young people or
young adult groups.
The association has been heavily involved in the recent
investigations into the link between a meningitis vaccine and ME (see story
here).
Aims/Objectives
Contact
Details
|
MES-N phone numbers |
| Chairman (Ellen Piro):
|
22 20 34 24 |
| Helpline :
|
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| Membership :
|
22 20 34 24 |
| Office Address: |
Kr. Augustsgt. 19,
Oslo, Norway |
Email:
post@me-forening.no
Website:
http://www.me-forening.no
Postal Address:
| Norges ME Forening |
| Eiksveien 96 A |
| 1361 Østerås |
| Norway |
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We hope to bring more detail
to this page at a later date |